Update! Ledger had his surgery a little over 4 weeks ago. We have experienced an absolute roller-coaster of emotions, we've had to process each step of the way and we've had to advocate strongly for him!

He was on life support and the team felt he was in a good place to be taken off so he was off for 3 days and ended up back on life support. During the 2nd time he was on life support we had multiple care conferences with the team discussing long term care, putting a Berlin in which is another type of support for him which could be a bridge to healing or possibly a heart transplant. Brady and I couldn't even grasp that that's what we were faced with for our son. After his cardiac arrest his left ventricle pressures were high, that's where the long term care and possible transplant came into consideration.

We weren't confident moving forward with this decision we couldn't understand that our STRONG boy was going to possibly need this type of intervention! We waited for a 2nd opinion from Texas which felt rushed because they wanted to move forward with the berlin machine last Thursday.

Our final plead to our team was please check his left ventricle pressures one last time before we committed to the long term care. This changed the course of our care drastically because when they checked again his #s were down! When I tell you he amazed the doctors that would be an understatement. That Thursday instead of doing the surgery to insert the Berlin for long term care he was scheduled to get off of life support once again! In these 2 weeks he has moved MOUNTAINS!

He was lifted off of his paralytics, they felt comfortable closing his chest and he is starting to slowly get off of his sedation meds. We watched our son prove how strong and resilient he is! The team is cautious but optimistic! We will run with all that HOPE and we are confident he will only continue to move mountains and HEAL!

THANK YOU for the support, the prayers, the positive vibes, positive energy, the check ins, the donations, food & coffee cards and helping with our girls! We have a fierce tribe behind us, we feel it and so does Ledger! He is HEALING in the sweetest baby steps but all steps in the right direction! He will be walking through our front doors to his sisters before we know it!

I know there is so much going on in the world and every other day it seems like somebody else is posting a GoFundMe. But let me tell you about my nephew, Ledger. Ledger was born in November 2022 with a heart defect. We are so grateful that the doctors and surgeons were able to save his life but they kept saying, “He will still need another open heart surgery.” Over the past 20 months he has grown into a strong little boy. He is the sweetest and smartest little love you could ever meet. He loves to eat food (especially salt and vinegar chips) and he loves to point at trains and airplanes. Last Monday, it was time for our sweet baby to have his second open heart surgery. He underwent 10 hours of surgery at Seattle Children’s and early Tuesday morning he went into cardiac arrest. After 45 minutes of CPR, they were able to bring him back to life and placed him on an ECMO machine, which in lay man’s terms is a life support machine. He has been growing stronger in this last week and we were hoping to get him off the machine and well on the road to recovery, but he is just not ready yet.

My sister is a small business owner who cannot work with her clients while she is away, my brother-in-law only has so much paid time to take on leave. They have been sleeping at Seattle Children’s for over a week with no end in sight. Having to start a GoFundMe to help with bills while your child is on life support is so sad, but that is where we are at in this country. If you can give just a few dollars, it will help this beautiful family survive. Parents shouldn’t be worried about buying food and paying bills while their children are undergoing major surgeries. Please continue to send baby Ledge all the positive vibes and even if that’s all you can do, that is enough! ❤️‍♥️