Many of you know my daughter Lalania from the community or through her work with child advocacy. Her auntie and myself are making a Go Fund Me for her to help support her bills, healing, treatments and recovery. In December, 2025 she was diagnosed with a very rare autoimmune disease, Granulomatosis with polyangitis (GPA). This form of vasculitis attacks the respiratory system, lungs, sinuses, throat, ears, kidneys, and lungs. This condition causes inflammation of the small blood vessels all throughout her body. This disease can cause organ damage and organ failure to the liver and kidneys, but can fatally attack any of the organs in her body at any given time. There are available treatments, but no cure. The disease has a high mortality rate. In January 2026 she was referred to the Mayo Clinic and started chemotherapy pills and steroids for the GPA.

March 2026 she visited Mayo Clinic Rheumatologist, ENT, and dermatologist where she underwent tests and skin biopsy’s that confirmed her diagnosis of Granulomatosis with polyangitis (GPA) and confirmed the diagnosis of an even more rare auto immune disease called Eosinophilic granulomatosis with polyangiitis (EGPA). Lalania was confirmed to have inflammation in her lungs and non calcified nodes in her lungs. She was confirmed to have swelling in every single sinus cavity resulting in zero air flow able to flow through her nose and sinuses. Her skin biopsy resulted in a diagnosis of small-vessel leukocytoclastic vasculitis and palisaded neutrophilic granulomatous dermatitis. Lalania also has been dealing with joint pain, joint swelling, brain fog and fatigue.

April 2026 she started her first infusion treatment, and visited with the Nephrologist. The Nephrologist confirmed that there is currently no kidney damage, however she still has concerning labs for her kidney health. She needs to see the nephrologist again in May and run labs again to see if her concerning labs go down with active treatment. If they do not go down in May, she will need a kidney biopsy. If the disease reaches her kidneys, they will destroy her blood vessels from the inside out.

Her second round of infusions are in May. She will undergo another infusion in 5 months which completes the treatment for GPA. After her infusions she will be starting her treatment for EGPA. Her EGPA treatment consists of a series of 5 shots over 5 months.

All donations will go directly to gas, food, hotels for future trips to Rochester and, Lalania bills.

Lalania underwent a septoplasty and sinus surgery November 2025 due to a severe sinus infection and her sinuses having blockage resulting in her sinuses not being able to clean / filter. From November 2024-November 2025 Lalania had an infection dealing with serve sinus pressure and pain, eye sensitivity to light, daily fevers, daily chills, fatigue, brain fog, nausea, and more, eventually resulting in a Staph infection. During surgery and recovery she used up all her PTO and PTO donations. After her surgery she had extreme pain, discomfort and was not able to breathe through her nose. After a month and a half of extreme pain and her surgeon prescribing her steroids / 3 different anti biotics, her surgeon was very concerned ordering lung CT scans and labs where he confirmed the diagnosis of GPA and from there she was referred to the Mayo Clinic.

Her diseases made her unable to heal from her surgery, causing significant scar damage and tissue build up in her sinuses and nose. Lalania missed a lot of work dealing with complications, pain, dizziness, nausea, brain fog, eye pain, causing her to have no pay from December to present times.

Lalania will need a corrective surgery on her sinuses, but it will be after she receives treatment for the two rare auto immune diseases as her tissues do not heal well right now.

Lalania has multiple appointments in May, and an Echo Heart scan June 2nd to make sure there are no infections in her heart values. She also has follow up appointments with her Rheumatologist in June.

So far we are waiting to see if her body responds well to the infusions and treatments and her doctors will be keeping a very close eye on her the next 6 months. Any help will be appreciated so Lalania can focus on healing, recovering and getting used to her new normal. It’s been a long journey to get here and these chronic diseases have taken a large toll on Lalania’s physical and mental health. She is immunocompromised and will be for throughout her treatment.

Both diseases are very rare and doctors are unsure how they are developed. Lalania has also donated a lot of her time participating in research studies, donated her blood and donated her DNA to the Mayo Clinic and John Hopkins Hospital for research on treatment types of GPA and EGPA and how to detect the disease earlier.

Thank you! Any donations, shares and prayers are very appreciated.