Help Support Kylee’s Family After Their Loss

It is with heavy hearts that we share the passing of Kylee Grace Herbst, a bright and brave soul who touched many lives despite her short time with us. Kylee passed away due to complications related to CDKL5 Deficiency Disorder, a rare neurological condition that severely impacts brain development, on April 20, 2025.

Kylee was more than her diagnosis. She was a fighter, a light to her friends and family, and a cherished part of our school community. While we are heartbroken, we are also determined to support her family during this unimaginable time.

This GoFundMe has been created to help cover:

Funeral and memorial expenses

Medical bills

Time off work and any other unexpected costs

Anything you can give, whether it’s $5 or simply a share, means the world to the family. Let’s come together and show them that they are not alone.

Thank you for your love, support, and prayers.

Celebration of Life will be on May 3rd at 1pm with reception to follow

North Real Life Campus

30447 N Roughstock Rd.

Athol, Id 83801

If you would like to send a card to the family, please use the following address:

Kylee Herbst or Jennifer Mertens

(In care of Norman Heath)

PO Box 2023

Post Falls, ID 83877

#CDKL5Awareness #InLovingMemoryOfKyleeGrace