- K
Kenneth Watt is an adventurous, compassionate, and energetic 9 year old, who was diagnosed with an inoperable brain tumor at the age of 3 years old on Friday, 03 Jun 2016.
The tumor was discovered from an involuntary nystagmus (eye wiggle) in the left eye and diagnosed from the results of an MRI scan. Upon further analysis, the biopsy confirmed his brain tumor is an Optic Pathway Glioma (OPG), which is a cancerous, slow-growing brain tumor, and developed around the optic nerve, which connects the eye to the brain. The diagnosis and treatment outlook is long-term and the goal is to kill the cancer cells as well as stop them from growing. Overall, the OPG tumor is known to be a long-term battle, possibly for Kenny’s entire life and the treatment depends on the tumor’s progression.
During the last 5 years, Kenny has had 18+ MRIs, 8 different Chemos and in the last 3 years the tumor has been stable and nonresponsive. The hope for 2021 was to continue the stable progress and give Kenny a chemo break; however, the results of April's MRI scan resulted in unsettling challenges and emotions; the tumor is active and grew to an uncomfortable level.
The current treatment plan requires more visits to Denver Children's; continued Chemo; trial OPG Chemo; and, different effects. With the uncomfortable growth, the doctors are concerned Kenny will lose his eyesight soon. Kenny has been and will be able to continue living a normal life, as much as possible, given the treatments are successful and there are no significant side effects from the treatment or tumor.
Joanne and Justin endure unfathomable challenges and concerns as parents. Their courage, faith and outlook is remarkable by overcoming the negative and pressing on with positive attitudes. We hope to provide Kenny and his family encouragement they need each day. We all support them to let them know they are not alone. We pray to provide them comfort during the difficult moments and bless Kenny with healing.
https://www.facebook.com/groups/846451538820870/?ref=share
The tumor was discovered from an involuntary nystagmus (eye wiggle) in the left eye and diagnosed from the results of an MRI scan. Upon further analysis, the biopsy confirmed his brain tumor is an Optic Pathway Glioma (OPG), which is a cancerous, slow-growing brain tumor, and developed around the optic nerve, which connects the eye to the brain. The diagnosis and treatment outlook is long-term and the goal is to kill the cancer cells as well as stop them from growing. Overall, the OPG tumor is known to be a long-term battle, possibly for Kenny’s entire life and the treatment depends on the tumor’s progression.
During the last 5 years, Kenny has had 18+ MRIs, 8 different Chemos and in the last 3 years the tumor has been stable and nonresponsive. The hope for 2021 was to continue the stable progress and give Kenny a chemo break; however, the results of April's MRI scan resulted in unsettling challenges and emotions; the tumor is active and grew to an uncomfortable level.
The current treatment plan requires more visits to Denver Children's; continued Chemo; trial OPG Chemo; and, different effects. With the uncomfortable growth, the doctors are concerned Kenny will lose his eyesight soon. Kenny has been and will be able to continue living a normal life, as much as possible, given the treatments are successful and there are no significant side effects from the treatment or tumor.
Joanne and Justin endure unfathomable challenges and concerns as parents. Their courage, faith and outlook is remarkable by overcoming the negative and pressing on with positive attitudes. We hope to provide Kenny and his family encouragement they need each day. We all support them to let them know they are not alone. We pray to provide them comfort during the difficult moments and bless Kenny with healing.
https://www.facebook.com/groups/846451538820870/?ref=share
Organizer and beneficiary
Joanne Watt
Beneficiary