Hi everyone,

We are reaching out to ask for help and prayers for our sweet Kendall Williams, who is just 14 years old. Recently, Kendall was diagnosed with an extremely rare brain disease caused by a mutation in the TMEM222 gene — a condition so rare that only 17 other people in the entire world are known to have it.

This heartbreaking diagnosis comes on top of her ongoing challenges with epilepsy and autism. Together, these conditions have created a complex and unpredictable journey for Kendall and our family.

The most devastating part of this disease is that Kendall’s brain is slowly dying, leading to Alzheimer’s-like symptoms at just 14 years old. She has begun to lose her memory — sometimes forgetting simple things and, most painfully, even the faces and names of her loved ones. She’s also experiencing increased aggression and confusion as her brain continues to decline.

Every day brings new challenges, countless medical appointments, hospital visits, and specialized treatments that are emotionally, physically, and financially overwhelming. Because this disease is so rare, much of Kendall’s care involves travel, consultations with specialists, and experimental approaches not covered by insurance.

We are doing everything we can to give Kendall the best quality of life possible, but we can’t do it alone. Any donation — no matter how small — will go directly toward medical expenses, therapies, travel, and ongoing care to help support Kendall through this unimaginable journey.

If you aren’t able to give, please consider sharing Kendall’s story to help raise awareness for this rare disease and keep her in your thoughts and prayers.

Thank you for your kindness, compassion, and support.