Kayson was born with Alagilles syndrome and has been under the care of OU children's . He has a lot of ups and downs and had a liver transplant when he was 6 . Along with 24 other surgeries and procedures. As of now kaysons kidneys are stage 3 and his new liver has been showing signs of rejection on and off. As of yesterday 6/18 he was put on a heart monitor for his high blood pressure and episodes he has been having .We are needing to get him to Cincinnati children's hospital. They are the #1 hospital for alagilles research and can provide more answers for our many questions about our sons future. Our RV is not going to make it so we have to get a motel or something like that until we get jobs and a place . please help if you can and share share share and always we appreciate everyones help.

9-3-2026 we have been in Indiana a little over a year now doing good and kayson is stable at the moment we had Dr appts the last few days . Liver is looking good. Kidneys are stable not any better but not getting worse at the moment. We go back for more testing in December with the nephrology team and then some time June or July kayson will have another surgery. A liver biopsy to see who the liver looks also.

The car we have gets us from A to B but we aren't sure for how long . We are really needing a dependable car to get kayson to his appointments. The car we have has no A/C and the last two days were miserable in over 100 degree weather to going to and from Cincinnati one day and Louisville the next . We aren't looking for a hand out just a hand up .