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Kaslyn is a senior in high school, captain of the cheer team, a hard worker, and it's all been put on hold. We have no idea how long or how far this journey will take, but we know she will be stronger than ever because of it. We need to raise funds for travel ( most likely to Connecticut for specialist but I will keep you updated), On going treatments and medication at home while she waits, and household bills since her single mom Jessica unable to work full time and manage Kaslyn's care.
Here is her story so far....
This journey started on Oct 9 in our local ER, where Kaslyn was transferred to ECU and later taken to Duke, spending 33 days total hospitalized. Along the way, Kas was diagnosed with 4 abdominal compression syndromes: MALS (median arcuate ligament syndrome), SMAS (superior mesenteric artery syndrome), Nutcracker syndrome, and May-Thurner syndrome. These syndromes are compressing her celiac artery (MALS), duodenum (SMAS), left renal vein (NCS), and her right common iliac artery is compressing the left common iliac vein (MTS). This affects the blood flow to her abdominal/pelvic organs, causing intense abdominal pain, narrowing of her small intestine, and pain in her left leg. It also prevents Kaslyn from being able to eat normally. The intense nerve pain associated with neurogenic MALS makes even swallowing water painful. She is requiring nutrition through a nasal feeding tube to bypass the compression and pain. Surgery is the only option for a MALS release at this point, as you correct the compressions from top to bottom. We are unsure of the future and how we will tackle the other compression syndromes. We’re taking it one day at a time. Due to the complexity and rarity of Kaslyn’s case, out-of-town specialists are a must to provide optimal outcomes.






