Support Kallie: helping a brave mom battle FND

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Support Kallie: helping a brave mom battle FND

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Hello everyone, if you don’t know me already my name is Kallie and I’m from Allen Park, Michigan. I am 32 years old and a mother of 2 toddlers. My tremors started in late 2019, I was misdiagnosed for 3 years. I was properly diagnosed with Functional Neurological Disorder (FND) in September of 2022. FND is a disorder involving the brain. “Research and experience have shown that FND results from problems with functional connectivity in the brain and the body.” To sum it up I have to retrain my brain. As some of you may know, I am a stay at home mom. Every single day is a struggle for me. When I wake up, I have about 5 to 10 minutes before all my symptoms start to attack me. My tremor affects my entire body, my legs lock up and my limbs stiffen. It gets gradually worse throughout the day. By 1pm I am physically and mentally exhausted. By evening when I go to lay down my body is still trembling which doesn’t allow me to sleep. Every single task is difficult and sometimes impossible. Whether it be brushing my teeth, showering, pouring a glass of milk for my kids, I am unable to hold a glass of liquids without spilling, dressing myself and my kids, preparing meals, using utensils, giving my kids a bath, settling my kids when they are upset or need to be held and so many more things that I used take for granted. This disorder CONSUMES ME. JUST TO BE ABLE TO WALK NORMALLY would mean the absolute world to me. We are a one income household. With that being said, we have spent thousands and thousands and thousands of dollars on all of the treatments that I have gone through thus far. Whether it be the two programs I have done- 1 being a week long recovery project program in Kalamazoo, MI and the other being a two week long program at the University of Michigan, hypnosis, sound baths, brain therapy, meditation, yoga, physical and occupational therapy, mental therapy, CBT therapy, self-love journals, CBT workbooks, all the equipment + all the books. The problem is, is that a lot of medical professionals do not know much about FND as of yet. It’s more common over seas. After getting let down multiple times and feeling extremely defeated. I decided to take matters into my own hands. I started doing a ton of research. That’s when I found Re+active Therapy. The whole clinic + staff specialize in my disorder. They have had countless amounts of success stories. I got accepted into their program. It’s a 3 to 10 week intensive program, 3 to 4 hours a day, in Torrance, California. Unfortunately, it is an out of network program. Housing is also not included. My family and I desperately need your help, it WILL finally help me get my life back. With all of my love and gratitude . -The Matyaszek family.

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Kallie Matyaszek
Organizer
Allen Park, MI
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