Hello friends, my name is Robyn & I’m wanting to raise funds for a dear family very close to my heart.

On 22 July, Ashley and Daniel welcomed their beautiful twin boys into the world far earlier than expected.

Kai weighed just 1.4kg and Joey weighed 1.6kg.

Their arrival marked the beginning of a journey no family could ever prepare for.

During her pregnancy, Ashley was diagnosed with Antiphospholipid Syndrome (APS), a rare autoimmune blood clotting disorder that made her pregnancy extremely high-risk. After going into premature labour in Port Macquarie, Ashley was urgently flown to John Hunter Hospital in Newcastle.

At just 32 weeks gestation, the twins were delivered via an emergency caesarean section under general anaesthetic. Daniel waited alone outside the operating theatre for almost two hours, not knowing whether his wife or babies were okay.

The delivery itself was incredibly traumatic. Ashley suffered a significant haemorrhage during surgery and Kai’s birth was particularly difficult, requiring a complex extraction before he could finally be delivered safely.

Just as they began navigating life in the NICU, another devastating blow arrived.

When Kai was only one week old, doctors discovered he had Coarctation of the Aorta (CoA)—a life-threatening congenital heart defect where the body’s main artery is severely narrowed. Without treatment, this condition can become fatal within weeks. While the diagnosis was heartbreaking, Ashley and Daniel are incredibly grateful it was discovered before it was too late.

Everything changed overnight.

Kai was urgently transferred by medical flight from John Hunter Hospital to The Children’s Hospital at Westmead in Sydney for specialist cardiac care. Meanwhile, Joey remained behind in Newcastle.

For three heartbreaking days, the twins were separated.

Ashley was forced to leave one newborn son while travelling to be with the other, a decision no parent should ever have to make. Eventually, after advocating tirelessly for their family, they were able to have Joey transferred to a hospital closer to Kai, allowing the twins to be together again.

Even now, Ashley walks between hospitals each day just to spend precious time holding both of her babies.

On 31 July, Kai underwent his first heart procedure to treat his coarctation. Doctors inserted a stent to improve blood flow, a temporary measure designed to give him the best chance to grow stronger before he faces major open-heart surgery in approximately 6–8 weeks.

While his doctors are hopeful, Kai’s journey is far from over. He faces ongoing treatment, specialist care, regular follow-up appointments in Sydney and potentially further surgeries as he grows.

Throughout all of this, Ashley and Daniel have also had to leave behind their home in Port Macquarie and their two older sons, Mallee (4) and Banks (3). Before this, the boys had never spent more than a single night away from both of their parents.

Now their family has been divided between cities, hospitals and loved ones, all while trying to support four young boys through circumstances no family could ever imagine.

We are not asking for charity.

We are asking for a lifeline.

A way to help this family focus on what matters most - being beside Kai as he fights for his life, loving Joey through his NICU journey and ensuring Mallee and Banks continue to feel safe, supported and deeply loved during this incredibly difficult season.

The funds raised will help ease the enormous financial pressure of this journey by assisting with:

* Lost income while Ashley and Daniel remain away from work.

* Travel between Sydney, Newcastle and Port Macquarie.

* Accommodation, meals and day-to-day living expenses while living away from home.

* Ongoing medical appointments and future trips for Kai’s cardiac care.

* Whatever practical support this family needs as they continue navigating the months ahead.

Kai has fought every single day since the day he was born.

Now it’s our turn to stand beside him and beside the family who loves him so fiercely.

If you’re unable to donate, simply sharing this page with your family and friends is another incredible way to help.

From the bottom of our hearts, thank you for wrapping Ashley, Daniel, Mallee, Banks, Joey and brave little Kai in your love, prayers and support.

No family should have to face this journey alone.