Support Alyssa & Noah in Kado's Fight Against SMA Type 1

On Thursday, June 27th, beautiful Kado Wave Comeaux was born to Alyssa and Noah in Lancaster, PA.

Less than 2 weeks later, bloodwork that had been taken in the hospital at birth revealed that Kado had a rare genetic disease: Spinal Muscular Atrophy (SMA) type 1. Type 1 is the most serious form of SMA; at his first appointment in Hershey he already showed early onset symptoms of muscle weakness.

Kado's diagnosis has a 95% mortality rate by 18 months without a gene therapy to introduce the SMN1 protein that he is missing. This is a very new therapy - it only began use as a treatment option in 2019. Results have been positive because most of the SMA type 1 children receiving it are living past 18 months.

Kado could begin gene therapy by the end of July or early August. And even after that, there will be a lot of medical care happening, including physical therapy.

Many have asked if you can do anything to help. Thank you. We feel your love and support through that. Noah and Alyssa had budgeted for Alyssa to go back to work after a one month maternity leave, but that won't be realistic with all of Kado's upcoming needs. Noah also will miss work and be present at some of the early therapy sessions, but does not have PTO accrued yet with the drywall company he works for.

You are invited to give to this fund! It will be difficult to cover expenses while missing work so they can tend to all of Kado's needs and appointments at Hershey Children's Hospital. We can help Alyssa and Noah to be present to Kado and his increased care in the coming year by covering basic needs and bills. Any and every amount is a huge gift. 100% of your donation will go directly to Alyssa and Noah to provide much needed practical support towards that goal for the year ahead.

Check back here for ongoing updates.