Hi there!!

In April of 2024, our life was forever changed. Our beautiful daughter, Kacie, was diagnosed with Angelman Syndrome. Angelman Syndrome is a rare genetic disorder (occurs in one in 15,000 live births or 500,000 people worldwide) that causes delayed development, problems with speech and balance, mental disability, major sleep disturbances and, sometimes, seizures. Despite these symptoms, people with Angelman syndrome have an overall happy and excitable demeanor. They will literally ✨light up the room✨.

There is no cure for Angelman Syndrome. Our sweet Kacie will never be able to live an independent life. She will always need to be watched and cared for 24/7. This isn’t necessarily a bad thing! We are truly blessed that god chose us to be her parents. Her snuggles and hugs are the best.

When Kacie was diagnosed, our hearts were completely shattered. How is it that this beautiful girl is sitting in front of us, yet every once in a while we mourn the life that she won’t be able to have? The emotions come and go in waves. We made a promise to ourselves and Kacie that we would work hard to spread awareness. Our goal for Kacie is to provide her with absolutely everything necessary to allow her to live life to her fullest potential.

Unfortunately, as many parents with children that have a disability know, that isn’t the easiest thing. Medical bills, therapy bills, and the cost of equipment can be overwhelming. Our goal for this go fund me is to do just as mentioned.. raise AS awareness and to help her live a safe, healthy, and equipped life!!