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My name is Joni. I am a 46 year old nurse and mother of 4. I have recently been diagnosed with a rare autoimmune condition called Wegners disease. I have been healthy all of my life until in march of this year I woke up to go to work one day and was so short of breath that I couldn’t barely even breathe. I calmed myself enough that I let my daughter know I was going to the ER and that everything was okay, I just didn’t feel well. I then drove myself to the ER, got out and went to the check in desk and handed them what I thought was my insurance card and was immediately taken to a bed and I don’t remember anything after that until 4 days later because I was put on a ventilator. When they did wake me up, I had no idea that it had been 4 days, and I could barely speak. I was hospitalized for 6 days and was unable to speak. Since this hospitalization I have been hospitalized 4 or 5 more times, and have been off of work multiple times due to this illness and over this span of time found out that my so called insurance that I have been paying for was in reality not insurance at all but some 3rd party discount program. I have accumulated over $150,000 in medical bills and my insurance company will not honor any diagnosis including the Wegners for me to receive any kind of disability. And I do have long term and short term disability that I have bee Paying for. I have exhausted all the finances that I have and have recently been unable to work because of an absolutely necessary surgery. It was so necessary that they overlooked $115,000 in medical bills that I already had. I have been working as much as I can in between hospitalizations and the medical necessity that was decided by my physician that I was not physically capable of. I am not one to ask anyone for help for anything no matter how hard things have gotten other than from my family. I just pull myself together and figure it out. I have in the past let my pride get in the way of asking anyone for anything, but I know that God is not pleased with me for being prideful. I have prayed over asking for help and I know that I need help that only God can and will provide through others. I am literally in a financial crisis and would greatly appreciate any kind of help that anyone can offer. I thank you for even taking time to read this even if you can’t help me, I appreciate all and prayers and thoughts.


