***Jenn posts updates regularly on Jaxson’s SCID Journey Facebook page.***
Jenn and Jordan Walsh welcomed their son Jaxson on July 20th, 2020. He weighed a whopping 9 lbs 1 oz! He was perfect.
When Jaxson was a week old, he was diagnosed with Severe Combined Immunodeficiency (SCID), a very rare genetic condition. He was born with little to no immune system. Babies with SCID cannot fight off even “normal” germs— a simple cold can be fatal!
Luckily, there is a cure! A perfectly matched bone marrow donor was found forJaxson. A bone marrow transplant can give him an immune system for the rest of his life. The process is complex, however: chemotherapy, the transplant, then management of the effects of both processes on his little body. Everyone around Jaxson and his family held up the hope that a perfect match would make the road to a cure easy.
Jaxson entered the hospital for a week of chemotherapy on November 3. As his body worked to accept the transplant, his condition became more severe. His liver and kidneys have been struggling, requiring dialysis in the PICU since November 24th.
Jordan and Jenn have fought to stay together by Jaxson’s side during his stay, which has been very difficult due to the pandemic. Even after discharge, their family will need to be very careful until Jaxson’s immune system becomes fully established.
Please help our best friend and her family make life a little easier as the medical bills add up and they focus on a future with their happy, healthy little boy and his big sister.
- Laura and Jacqueline
- Ryan Lowman
- David Hernandez
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