Support Jaxsen's Journey to Better Health

On May 27, 2016, Jaxsen came into this world fighting for his life. Jaxsen’s umbilical cord was wrapped around his neck, and he had to be resuscitated. Jaxsen suffered a lack of oxygen to his brain and had to be immediately transferred from Riverside Kaiser to Downey Kaiser NICU. We had only a few minutes to make the decision for the transfer because he only had so many hours to get him to the cooling bed to help protect the brain by slowing down its metabolism and preventing further damage. While he was getting transported, I was hospitalized for HELLP and preeclampsia.

While Jaxsen was in the NICU, we learned that he suffered brain damage, and the MRI showed significant damage to his occipital lobe, which would impact his vision.

We looked into Hyperbaric Oxygen Therapy before and were told it would not work. We have taken him outside of our insurance to get him low vision eye exams.

Jaxsen participated in early childhood development through the Regional Center. As Jaxsen got older, the developmental delay was more noticeable. Jaxsen lost a lot of school time when COVID was going on and lost most of the peer interactions which helped him learn.

Everything seemed to be going well until September 2022. Jaxsen had his first seizure, and we had to call 911. We didn’t know what was going on, but instincts kicked in, and I immediately started my clock.

From that day on, we knew seizures were going to be a part of his new normal. He is unable to tell us how it makes him feel or if it hurts. It’s heartbreaking to watch him go through it. Medication after medication, nothing seems to keep them at bay.

One day, another parent from the school sent me a link to a center in Texas called Neurosolution Center of Austin. I went through the website and reviewed the patient book. I started reading and it read, “Can you help my condition?” Then I saw it: seizure disorders, developmental delay, and anoxic brain injury. I was shocked. To even think like maybe this will work, like we can change this kid's life. We’ve been planning our lives around Jaxsen to make sure if something happens to us, there is something in place for him.

We have decided to participate in one week of intensive therapy and Song Laser Activated Plasma (VSEL) treatment. We will be heading to Austin at the end of June.

Patient Guide

Lately, he has been talking about what he wants to be when he grows up, and he wants to be a teacher so he can tell people what to do. When I heard him ask me if he can be a dad, it broke my heart. Jaxsen is the sweetest kid you will ever meet, and he can put a smile on your face. His heart is pure.

Even though, the treatment we are seeking is not covered by insurance. After researching the treatment, we truly feel it can help set Jaxsen up for a brighter future.

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Thank you for your kindness, generosity, and support.