Hello, we are raising funds for Jane, a Mexican-Nigerian girl who was diagnosed with cerebellar hypoplasia, microcephaly, and scoliosis, symptoms of Congenital Varicella Syndrome. Hypoplasia is a rare sub-condition of cerebral palsy in humans. All of these symptoms result in a reduction in the size of the brainstem, incomplete development of the cerebellum, and a smaller body size, in addition to a curvature of the spine due to scoliosis.

Jane is not a candidate for surgery or treatment, but we can help her achieve maximum comfort in her daily life. Additionally, there is no governmental economic support, nor caregivers provided. Her mom takes care of her 24/7 while also working to make ends meet. That's why I'm requesting support to acquire Jane's needs.

These include:

Medications

Postural aids: walker, mobility chair, and exercise bar

Learning devices

Note: we've made this GoFundMe page to reach more people outside of Mexico. Currency is in USD.

On Jane's Story:

She was born on May 12, 2016, premature at 28 weeks due to chickenpox during pregnancy. She remained in intensive care for several days due to cardiovascular complications and feeding difficulties caused by GRD (gastroesophageal reflux disease). She wasn’t responding to medications, and doctors discovered she had a brain cyst and a congenital heart defect. Even though doctors gave up hope, she managed to overcome difficulties such as reflux and now responds to medications for her heart.

Jane's life is a miracle; she is now 9 years old, exceeding the life expectancy given to her at birth. Due to cerebellar hypoplasia, an incomplete development of the cerebellum, along with severe scoliosis, she cannot speak or walk. Despite all the complications, she fights, is always cheerful, and has a great interest in technology. Jane is studying on a scholarship at the Nuevo Amanecer Institute, the only institute for children with cerebral palsy in Monterrey, Mexico, where she resides.

Jane lives with her mother and two older siblings. For her mom, as a single mother, it's difficult to provide all the necessities she requires without substantial government support for people with disabilities in the country. However, we continue to hope to provide her with everything she needs.

As she grows, more needs arise, such as how to carry her up the stairs at home, annual checkups, and more.

Through this fundraiser, we also seek people that can take care of any of the daily items she uses in order to have continuity to this support.

Any donation, whether small or large, and by sharing with loved ones, you help us reach our goal. We hope to raise more than the initial goal and continue investing in Jane's health and happiness. Our hope and motivation is seeing Jane's bright smile each day, and knowing she has a great purpose to fulfill. While she still lives, we want to take that mission along with her.