Support Jadyn's Journey Through Brain Surgery

It's been a hell of a year to get to this point but the answer is BRAIN SURGERY. Jadyn will be having a Chiari decompression surgery July 8th. They say it takes a tribe so we're asking for our tribe to please help. Help us make this time just a little easier by helping us worry less about financials and more about Jadyn and her recovery.

If you want more info then please dive into our story below.

In October 2022 Jadyn started to have debilitating headaches, some bladder control issues, horrible neck pain, honestly all over pain, she was losing muscle in her legs, her stomach never felt good, she was always more than tired, SHE WAS NOT HER. My momma gut ached, I knew something was up.

An MRI showed that Jadyn had Chiari Malformation type 1, a condition in which brain tissue extends into the spinal canal. It occurs when part of the skull is misshapen or smaller than is typical. The skull presses on the brain and forces it downward. Jadyn was immediately referred to a neurosurgeon as her brain tissue was already 12mm distended. Jadyn's neurosurgeon did her own MRI and this time also included her full spine. That MRI showed that her distention was actually 15mm and that she also had a small syrinx in her thoracic spine meaning her second diagnosis came, Syringomyelia. Her neurosurgeon sent us onto the worst part of CM's journey (besides all the crazy symptoms and PAIN) we spent most of 2023 going to numerous specialists that have evaluated her for additional comorbidities that are common with CM. Jadyn has accumulated several more diagnosis' since her first. Including a genetic mutation that causes cognitive delay and intellectual disability that makes life just a little more challenging for her, mild hydronephrosis ( her kidneys are backing up), and sleep apnea that has yet to be resolved by tonsillectomy and instead went from obstructive to central. Central apnea is from the brain compression making her brain not signal correctly to the muscles that control your breathing. Our long journey of testing and appointments has lead us to the decision that surgery is our best option.

Jadyn's surgeon will go in at the base of her skull and the top of her neck area. They will remove part of her two top vertebrae and then a small piece of skull to allow Jadyn's brain more room. At that point they will also use an ultra sound to determine if Jadyn's dura also needs to be given more room. If so they will cut the dura open explore her cerebral tonsils and decide if they need shrunk and cover it with a dura patch that will allow her brain more room and help restore the normal flow of cerebral spinal fluid.

Jadyn will be in the hospital anywhere from 4- 7 days, if there are no complications. And 6-8 weeks of recovery at home.