Support Izayah's Heart surgery and health journey

My son Izayah was diagnosed with VSD (ventricular septal defect) and CCTGA (Congenitally Corrected Transposition of the Great Arteries) while I was pregnant. We thought that any surgery he would need would be able to wait until he was roughly a year old.

I went to an NST appointment on April 28th and was told after him failing the NST that it was time for him to come. On April 29th, we laid eyes on our sweet little boy for the very first time and were told a few days later he would need surgery much sooner because of his rapid/fast breathing.

On May 20th, he had his first heart surgery to put a band around his pulmonary artery to help slow down that breathing. He will need at least one more surgery to fix the hole in his heart, and during that time, they will also put leads in for a pacemaker in case he would need one at a later time. But we have to wait until he is bigger; they said that could be 6 plus months from now, but we won’t know until the time comes! This band around his PA will give him some time to grow.

With that being said, our sweet boy is still in the hospital, but once he is able to come home, we will still have to make the trip to UVA multiple times a week to keep an eye on his heart until the next surgery, and then we will have another long hospital stay. We have been traveling back and forth to UVA a lot even before he was born because he was a high-risk pregnancy, and since him being born, we have still made this trip regularly. Izayah has had 3 surgeries total one for his heart and then he had to have another to fix his diaphragm that shifted during the first surgery. He also had to have surgery to implant a G-TUBE into his stomach so that he is able to eat. Any help is greatly appreciated as we have missed work and funds have been cut.

I am in hopes that this will help financially with the travel back and forth, bills, extra things for our boy. Thank you all!