- d
- S

Support Holly Barbush's Healing Journey
0% complete
$1,000 raised of
12 donations
Hello! My name is Indra and i am raising funds for my dear friend Holly Barbush.
About three years ago, things started to not feel quite right in Holly's body. In 2022 her hands started going numb and she was feeling profound exhaustion.
In November 2024, with these symptoms still present and a few more added, Holly went on a trip to Florida to spend Thanksgiving with her family and on the flight things took a turn for the worst.
On this long flight, she temporarily lost her vision to the extent that she could not read the board with her connecting flight info. Her eyes were so blurry that nothing could focus them. That night, while asleep she lost all feeling in her upper body. The symptoms didn’t go away, but got worse.
ln March of 2025, Holly went to see a neurologist and it wasn’t until the end of May that a venogram discovered her right iliac vein was completely collapsed. This is the main vein that brings blood from your legs back to your heart. She hadn’t been getting sufficient blood to her upper body since November and potentially had flow restriction since her symptom onset in 2022. She was pooling old blood in her pelvis, which was causing excruciating pain. They roto-rootered the old blood out with a drill that went through her entire body from her jugular vein down into her pelvis and the next week they went in again and put a stent in her iliac vein to open it back up.
Recovery from the surgery was excruciating and painful, she couldn't work and her body was in a steady state of pain and discomfort. Holly remained hopeful, and was managing. But then things started to go down hill when in July 2025, two weeks after surgery, both arms went numb. and she started experiencing leg pain. She spent the next six months after surgery, having tests run, seeing expensive specialists, and ruling out various conditions.
In that time she learned that she has a connective tissue disorder called Ehlers’s Danlos syndrome, (EDS). It’s a genetic collagen mutation that affects the entire body because the body is made up of connective tissue and collagen, even your brain.
The second thing that happened after her surgery that impeded her healing was that she developed a condition called postural orthostatic tachycardia syndrome (POTs). Basically her autonomic nervous system isn’t functioning properly anymore and her body struggles to do basic things like pump blood to her upper body so that when she stands up she gets dizzy.
She is unable to work a full time job until she can heal from her illness and gather more information about how this disability will effect her long tern.
All that to say, our dear friend needs some financial help to pay for medical bills and pay for the very basics in life. She has moved in with her dear friend Kelly who is helping her with housing, but Holly needs substantial help to pay for these rising medicial bills and some basic day to day life needs.
We hope you can help!

