Support Hayley's Fight to Survive

Hi, Friends!

My name is Hayley.

I’m a 47 year old artist/dork/teacher/mom/feline enthusiast

(and Swiftie!)

I am terminally ill and in need of help.

I have been ill for many years. First, being diagnosed with Zollinger-Ellison Syndrome in 2004. I was treated for Esophageal Cancer when my youngest child was one year old. I was a Cancer patient during the pandemic, which was terrifying.

However, In the past three years, my health took a nosedive. I was under a huge amount of stress and my body just “broke” under the pressure. I was diagnosed with EDS, POTS, MCAS, Diverticulitis, Gastroparesis and more.

I lost the ability to move without assistance.

I'm no longer able to drive and had to surrender my license, because of the medication I’m on. I’m also unable to dance, which definitely hurts the worst. (Dance was a huge part of my life and I miss it desperately. ) I am now reliant on my motorized wheelchair.

These drastic changes in my life left me incredibly depressed.

I withdrew from everything and everyone.

My husband took time off from work (without pay) to take care of me.

It became clear that I needed more help

He took more time off to become my caregiver.

But, we lost our only source of income.

Without steady income, things got tight fast.

I started selling all my belongings on eBay.

My pain management prescriptions are not covered by insurance, and I have to fight my insurance for every single, cortisone injection and prescription refill.

My monthly, medical expenses are a constant source of stress and anxiety. The stress makes my medical conditions worse. It’s a horrible cycle.

My husband and I have two, wonderful children. They are watching all of this and it breaks my heart.This is not the childhood that I wanted for them. They don’t deserve this and I feel horribly.

My health is declining and we have no money left. If my husband gets another job, I lose my caregiver. If he doesn’t get paid, we will certainly lose our home.

We have no extended family.

It’s a very difficult situation to be in.

This means waking up from surgery with no one there, (because your spouse is with the kids) and going to every doctor’s appointment alone (for the same reason.) It’s a horrible situation, but I will never stop fighting to survive. I just wish things were easier.

I want to let you know that I appreciate each and every one of you. Thank you for taking the time to read this.

I promise to pay it forward someday.