Support Harley and the Wells Family
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Support Jessica & Harland as they prepare for their son Harley's diagnosis & treatment at Boston Children's Hospital. Funds raised will go directly to the family to offset associated costs (food, gas, parking, care for Izzy, toys, treats - basically whatever they need to get them through!).
From Jess:
No parent wants to hear “Your child has cancer”. Harley has been diagnosed with B-ALL which means B-Cell Acute Lymphoblastic Leukemia.
To read more you can look at this: https://www.webmd.com/…/b-cell-acute-lymphoblastic-leukemia…
So here is a preliminary outlook on what Harley’s treatment is going to look like:
-we entered him into a clinical study for low risk patients (at the moment he is considered low risk from what they have found). This study is looking at reducing the toxicity of the treatment, therefore if he remains low risk he won’t receive one of the normal toxic chemo meds.
-if at any time they determine his risk level increases they will adapt the treatment schedule as needed
-he will be getting the first bit of chemo in his spinal tap tomorrow before the treatment begins
-Treatment Schedule (subject to change due to complications or other factors):
1) Prophase (3 days): steroid treatment intravenously twice a day
2) Induction IA (4 weeks): chemotherapy done in the hospital to kill all leukemia cells until none remain, otherwise known as remission. Mix of chemo by mouth, intravenously, and spinal tap.
3) Induction IB (3-6 weeks): chemo done as an outpatient at a clinic, hospital stay may be required if complications arise. 2 part phase, each 3 weeks in length. If he remains low risk he only receives the first part, therefore scrubbing off 3 weeks of treatment and the mitigation of toxic chemo. Mix of chemo by mouth, intravenously, and spinal tap
4) Consolidation IA (3 weeks): started as inpatient for first week with possible outpatient the last 2 weeks. Mix of chemo by mouth, intravenously, and spinal tap
5) Central Nervous System Phase (3 weeks): chemo done as outpatient in clinic, unless complications arise. Mostly chemo down by spinal tap twice a week, with by mouth and intravenously mixed in
6) Consolidation II (28 weeks): chemo done as outpatient, unless complications arise. Chemo given in 3 week cycles. Mix of chemo by mouth, intravenously, and spinal tap
7) Continuation (lasts until in remission for 2 years, remission is usually achieved at the end of Induction IA): chemo done as outpatient, unless complications arise. Chemo given in 3 week cycles. Mix of chemo by mouth, intravenously, and spinal tap
From Jess:
No parent wants to hear “Your child has cancer”. Harley has been diagnosed with B-ALL which means B-Cell Acute Lymphoblastic Leukemia.
To read more you can look at this: https://www.webmd.com/…/b-cell-acute-lymphoblastic-leukemia…
So here is a preliminary outlook on what Harley’s treatment is going to look like:
-we entered him into a clinical study for low risk patients (at the moment he is considered low risk from what they have found). This study is looking at reducing the toxicity of the treatment, therefore if he remains low risk he won’t receive one of the normal toxic chemo meds.
-if at any time they determine his risk level increases they will adapt the treatment schedule as needed
-he will be getting the first bit of chemo in his spinal tap tomorrow before the treatment begins
-Treatment Schedule (subject to change due to complications or other factors):
1) Prophase (3 days): steroid treatment intravenously twice a day
2) Induction IA (4 weeks): chemotherapy done in the hospital to kill all leukemia cells until none remain, otherwise known as remission. Mix of chemo by mouth, intravenously, and spinal tap.
3) Induction IB (3-6 weeks): chemo done as an outpatient at a clinic, hospital stay may be required if complications arise. 2 part phase, each 3 weeks in length. If he remains low risk he only receives the first part, therefore scrubbing off 3 weeks of treatment and the mitigation of toxic chemo. Mix of chemo by mouth, intravenously, and spinal tap
4) Consolidation IA (3 weeks): started as inpatient for first week with possible outpatient the last 2 weeks. Mix of chemo by mouth, intravenously, and spinal tap
5) Central Nervous System Phase (3 weeks): chemo done as outpatient in clinic, unless complications arise. Mostly chemo down by spinal tap twice a week, with by mouth and intravenously mixed in
6) Consolidation II (28 weeks): chemo done as outpatient, unless complications arise. Chemo given in 3 week cycles. Mix of chemo by mouth, intravenously, and spinal tap
7) Continuation (lasts until in remission for 2 years, remission is usually achieved at the end of Induction IA): chemo done as outpatient, unless complications arise. Chemo given in 3 week cycles. Mix of chemo by mouth, intravenously, and spinal tap
Fundraising team: Team Wellsy (2)
Diane Meehan
Organizer
Chelmsford, MA
Jessica Wells
Beneficiary
Elizabeth Healey
Team member
