Support Graham as he fights brain cancer

On Saturday, the 1st of May 2021, I (Graham) was at the workshop cutting on the table-saw when I had a seizure — not a convulsive seizure, but still a seizure, which... just doesn't sit well with table-saw work (or anything else, really.) My brain kinda ran off and started thinking all sorts of rapid-fire thoughts, and I just felt confused at first. I sat for a minute, went to the bathroom — where I noticed I could only see half my face — sat some more, realized I couldn't read or remember the name of the friend who was working on the other side of the shop.

I was scared, so I didn't say anything. I cleaned up my work mess, and left. On the way home, I remembered a family friend who had had a stroke, and decided I should probably go to the hospital. I got home, ate something, and called Cheri who immediately called an ambulance.

I had a CT scan at the ER, and can still remember the voice of the neurologist as she said, "There is no easy way to say this, but there is something in your brain." She recommended that I stay at the hospital until I could have an MRI, so I was admitted to a Neuro ward and after the MRI on Monday, they showed Cheri and I an image of a brain tumor just above and behind my left ear.

That was Monday, the 3rd, and by Friday morning, I was in surgery. Everything went very well, (as far as I know!), and the tumor mass was completely removed. I was not required to do "awake surgery", but they did call Cheri for me as they wheeled me down the hall immediately after the operation. I remember that call, and the awful post-op room, my impossibly sore throat from the intubation, the pain in my head... and waking up the next day, VERY happy to feel a little bit like myself.

I had intermittent difficulty speaking, and a lot of trouble reading and writing. But with some effort, and time, I was able to call and text with Cheri, my mom and dad, and my brother. Because of the Covid restrictions, no one was allowed to visit me in person in the ward.

I recovered quickly, and we were told my tumor was likely a Ganglioglioma and almost completely benign, but as a few weeks passed and I continued to feel better, the pathology reports came back, indicating a Glioblastoma, and a particularly difficult and aggressive one.

From there, we had 2 weeks... 2 weeks to learn and process, and to spend as much time together with me feeling relatively "normal". Last week (mid-June, 2021), I began a 6-week course of daily radiation and chemotherapy.

Cheri and I are still learning and processing and spending time together, and we are steeling ourselves for the long and formidable journey that lies ahead. I'll let her take over from here, because I have to go take a pill...

​​Cheri here: Needless to say our world has been turned inside-out and we are completely overwhelmed. Every day feels like a week and the to-do lists are gargantuan. On the other hand, the care and help we have received over the last weeks has been equally staggering. We always knew our lives were full of beautiful people, but we didn't "know" know. Unfortunately, it's been impossible to communicate and catch up with everybody the way we would like to, and we really wanted to find a way to share more of our story, and some of the other parts of our lives with the many people we appreciate and love.

So we've made a Youtube channel where we will try to post semi-regular blog posts and videos of us doing the things we like to do best (mostly music, but some other things might pop up in there too, who knows). If you'd like to keep up-to-date you can visit:

Youtube: https://www.youtube.com/channel/UCW_cwglYwvLWAsql3qeojhQ

And, as I suppose is obvious, if you'd like to support us financially, this is the place for that. 

It's very difficult to estimate how much things will cost, but we've tried our best to think about what it might look like. We have been lucky enough that thus far the hospital expenses in Berlin have been covered by Graham's insurance. But none-the-less there are things that add up, and we are going to be moving to Virginia soon and are unsure what might come our way in terms of costs of treatment in the US.

- Berlin health/treatment-related travel costs (car rentals, gas for borrowed car) = 470 Euros

- Healthcare “extras” (research-backed supplements, sunscreen for uv protection during radiation, complimentary treatments, anything that isn’t a prescription or that doesn’t happen at the hospital, etc) = 1400 Euros

- Real food — …so much kale, so much tofu (special ingredients due to adjusted diet, etc) = 500 Euros

- Travel to the US (flights, moving expenses) = 1250 Euros

- Immigration Lawyer and Visa fees for Cheri = 3500 Euros

- Travel costs for treatment at UVA = 500 Euros

- Loss of income due to being unable to work - Graham only… 1400 Euros/month x 6 months (May 2021 until at least October 2021) = 8400 Euros

- USA medical costs not covered by insurance, costs and fees associated with participation in clinical trials or studies — ??????????

= 16,020 Euro

We are very grateful to the many kind friends and family who have been so generous already, and we thank you so much in advance for your support.