UPDATE: Waylon was able to finally come home. His sisters were very happy to finally meet him. And he is ready to meet his brothers.

It has been a learning experience with feeding him through his g-tube, but he is finally gaining weight.

He is deaf and mostly blind. We believe he can see light. And he has a heart murmer.

He has several appointments lined up with specialists this month, which they will have to travel for.

He has a very long road ahead of him. We will find out more about his disabilities with this Syndrome with more testing and time.

Please keep Waylon and his family in your thoughts and prayers.

Any donations and shares are greatly appreciated. We thank you all.

Waylon was born on December 31, 2025, in Fort Smith, Arkansas. Shortly after his birth, he was lifeflighted to Children's Hospital in Little Rock, where doctors diagnosed him with CHARGE Syndrome. This rare and incurable disorder means that Waylon will require long-term, specialized care for the foreseeable future. His family has been by his side every step of the way, facing each new challenge with courage and love.

Waylon's mom, Abby, has had to stop working to care for him around the clock. The financial strain of ongoing medical bills, travel expenses, and daily living costs has been overwhelming. With Abby unable to return to work for the long term, the family is in urgent need of support to help cover these essential expenses and ensure Waylon receives the care he needs.

We are reaching out to our community for help. Any donation, no matter the size, will make a meaningful difference for Waylon and his family. Your kindness and generosity will help provide stability and hope during this incredibly difficult time. Thank you for supporting Waylon's journey.

Update:

Waylon's family was able to bring him home. He is deaf and possibly blind, and he has a g-tube for the foreseeable future.

Mom and Dad will taking him to many specialist in the next few weeks/months/years. This is not only a learning curve for us as a family but as well as the doctors with it being such a rare Syndrome.