Much like groves of Aspen trees that develop from a single root structure, Edie and Ava are monochorionic twins, identical twins that grew from a single, shared placenta.
As some of you may know, Edie was diagnosed with anencephaly at 20 weeks, and devastatingly, she passed peacefully in her parent’s arms just six hours after birth. Ava is showing strength and resilience with each day but faces a long road in the NICU in coming months, including future surgeries to address her cleft lip.
It goes without saying that it has been an excruciatingly difficult week as Lindsay and Steve simultaneously grieve the loss of Edie and navigate Ava’s care in the NICU, while Lindsay physically recovers from surgery, and they both continue to work to maintain their business.
This is against the backdrop of months of stress given the rare, high-risk nature of the pregnancy, a number of necessary emergency surgeries and procedures, and the complexities that arise from being in long-term hospital care during COVID-19. Painfully, Steve and Lindsay have not been able to be together with Ava due to COVID-19 visitation restrictions.
Their focus over these next few months will be on Ava’s care, grieving the loss of Edie and healing as a family. As a result, they will not be able to sustain their anticipated harvest and market schedule for their small business, Shady Grove Farm, greatly impacting their income and financial stability.
Steve and Lindsay are in need of financial assistance to help offset a number of unexpected costs ranging from mounting medical bills, NICU related transportation and visitation expenses, and future plans to celebrate and honor Edie’s life.
Anyone who has the privilege of knowing Lindsay and Steve knows what kind, loving, generous and supportive people they are. Their commitment to cultivating community has always been at the forefront of their personal and professional lives. If you are in a position to donate during this difficult time of need, any amount is deeply appreciated.
For updates from Steve and Lindsay and to follow Ava’s journey in the NICU please visit the family’s CaringBridge page at: https://www.caringbridge.org/visit/avasjourney.6.27.2020
With love and gratitude,
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- David Laws
- David and Michele Roy
- Teresa Cole
- Natasha West
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