Support for the Goile family

On the 27th of May, little Luther Oskar Goile came into the world fighting an uphill battle with CDG1A and HLHS – not one but two extremely rare conditions. Born with half a heart, Luther has been through more than many of us have experienced in life in his 11 days on this planet. Open heart surgery 1 day into life, cardiac arrest, needle after needle, CT scans and being attached to ECMO. He took each procedure like a little champion. It was discovered that the pulmonary arteries to Luther’s lungs were so small, they had no chance of delivering any form of oxygen to sustain life. Sadly, Luther grew his angel wings and passed away on 4.30pm, June 7th surrounded by family.

Dinah and Aaron fought hard for Luther every step of the way. They pressed the surgeons to operate on Luther in the first place and were optimistic against the odds. They fought and fought for Luther with such strength, determination and love and we are sure that Luther inherited the Goile tenacity along the way.

We are absolutely devastated for Aaron, Dinah and Audrey.  It has been a rough few years for them in  general, however anyone that knows them, knows they have battled on and always have done so with a smile and laugh. Nothing is ever too hard for them and they countlessly give their time to others without question time and time again. Aaron and Dinah’s daughter Audrey also has CDG1A and this has required a lot of time and money for therapies over the years.

We want to raise funds to cover the cost of Luther’s funeral and to give Aaron, Dinah and Audrey a well earnt break to grieve in their own time, as they are under a huge financial burden. Please donate what you can and share for the Goile family during this difficult time. Any amount would be received with heartfelt thanks x