Support for the Corbin Family

$7,100 of $15,000 goal

Raised by 53 people in 31 months
In December 2016 I was diagnosed with pleural mesothelioma.  Mesothelioma is considered universally fatal and I was given a life expectency of 2 years.  With two young children , it's been difficult to imagine not seeing them grow up.  I decided, in conjuction with my doctors, that I would opt for "active survellience" for as long as possible. It is important to me to maximize my actual livable days with my family vs just gaining days.  With this, my doctors told me to do all I could to live my life and make memories with my boys.


Today we learned that the mesothelioma has begun to grow, with 4 new lesions seen on my CT scan.  This has once again led us to an area of uncertainty and will require a multi-diciplinary team to help determine our next course of action and treatment.  These new findings also have made it more important than ever to do all I can to make as many good memories for my kids  as possible.  The boys and I have talked about things we would like to do, including visiting new cities, seeing a prefessional football game, and embarking on new adventures among other things.


I'm hoping to complete as many of these things with them as possible, but of course need to fit them between doctor and hospital visits and difficult treatment options. We have moved in with my parents so they may help care for me and to help ease the financial burdeon but since I'm now totally disabled, it can be hard to always have the finances for everything we would like to do. We also worry about the boys' futures and the abilty to pay for their education, etc with limited resources. After discussing these concerns with loved ones, the decision was made to set up this Go Fund Me.


Since receiving this diagnosis I have been humbled by the outpouring of love and support.  I am so grateful that my family and I are surrounded by so many amazing  and caring people, if not by proximity then in our hearts.

 For anyone who would like to  follow my journey, you're welcome to check out my facebook page @butterfliesforrachel . We will work to keep this page as updated as possible, if for nothing else, to raise awareness of the late effects of childhood cancer treatments and the need for more research into childhood cancers.


Love to all.


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We spent the week in Bethesda, at NIH. This was my first cycle of scans. Unfortunately these scans did not show us what we wanted to see. My tumor has grown and therefore, the medication wasn’t working. So they removed me from the study. This was very upsetting to D and I, and my family. At this point I’m going to see my team at Duke on Monday and figure out our course of action. There is another chemotherapy drug available, it will probably make me feel sick, but I’m not ready to stop yet. The silver lining is that we won’t be away from the kids every 3 weeks. This last trip was hard on Alden, so we hung on to that when I told them the news. I’m so tired of giving them bad news though. Just one of these times I want to tell them the treatment is working... maybe it will be with this chemo... I hope so. Please keep us all in your prayers and well wishes. We need the support now more than ever.
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So we made it. I’m in the study! There was some shaky uncertainty when my lab results didn’t come up to par on Monday but they recovered for Wednesday (we think Monday’s were due to dehydration caused by fasting for my biopsy) and everything worked out. We work in 3 week cycles. It’s an oral chemotherapy that I take twice a day, every day for 3 weeks then I return to NIH for labwork and I get scans every 6 weeks. As long as things look good, we keep going. So basically we’ll alternate a 3 day stay and a 4 day stay every 3 weeks in Bethesda. Keep the energy up for maximum results with minimal side effects. Hugs to all!
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So we are back at NIH. Trying to pull together these last few things so I can get that drug on Wednesday. So we’re here until Thursday. I had a biopsy today then returned to the hotel around 3 when I slept the day away. Tomorrow is a free day and there’s supposed to be a snowstorm. Then Wednesday I ave to have EKGs I think and possibly more lab work. Then I see the physician team and they will let me know if I’m in or not. My research nurse said the decisions aren’t usually so complicated. So keep up the well wishes they are working!
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After a really long day and a roller coast ride that left a lot to be desired, things are looking up regarding getting into the clinical trial. There are still some things that need to be done in the next few days to make it all work but we are hopeful. If we participate in the study we will get some money for travel for me but nothing for my caregivers so we’ll have to figure that out too. Please keep the well wishes and prayers coming. I will keep everyone updated as I learn things.

Thanks! ❤️❤️
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$7,100 of $15,000 goal

Raised by 53 people in 31 months
Created January 19, 2017
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RS
$100
Rick Seegert
5 months ago

Rachel, Happy birthday! We are sending you well wishes and we keep you in our prayers always. We love you! Rick, Lisa, Lauren & Cameron

$50
Anonymous
5 months ago
PC
$100
Pat Crocco
6 months ago

Sending love and healing prayers for successful outcomes and smooth sailing!

AS
$100
Alabama Seegerts
7 months ago

Rachel we are sending all our love and prayers for you and your family. God bless you all!

AY
$100
Aimee Yarber
8 months ago
HD
$200
Holly Donovan
8 months ago

My cousin is super woman.

KT
$75
Kendra Torrella
8 months ago
DF
$100
Donna Fornal
13 months ago

Love you Rachel ❤️

KB
$200
Kelly Brookes
13 months ago

Love you Rachel ♡

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