Support for Shaleene, CJ and little Bryce

Hi everybody! My name is Bryce. I’ve been here for 13 days but life has not been easy for me so far. Although I am perfect (Mommy and Daddy tell me everyday), when I was in mommy’s belly my insides didn’t form the way they should have. They knew before I was born that one of my kidneys had a blockage. What they didn’t know was that my stomach and intestines were not in the right place. The day I was born was a scary one. My mom and dad were told that they had to do an emergency c-section or else I wouldn’t make it, I couldn’t breathe because my placenta stopped working and I wasn’t getting any oxygen. My stay in the hospital seemed like forever. I was surrounded by people poking me all the time because of my kidneys and my blood platelet levels weren’t great. But after 5 days I was able to go home! Sadly I was only there for a few days before my Mom and Dad noticed that something wasn’t right. My belly was hurting really bad and I just couldn’t seem to eat. They brought me to the ER and after what seemed like a million tests I had to go in for surgery to fix my intestines. That surgery went well. But soon I was transferred to Boston Children’s Hospital because my kidneys were failing and the main vein that goes from my lower body all the way up to my heart had a massive blood clot, it was so bad that it blocked all blood flow to my heart on the right side of my body, I turned white and my skin began to marble because my heart wasn’t circulating blood throughout my body, they were worried that my heart might stop. The doctors had to work quick to get me to Boston and prepped for surgery #2, luckily my surgery went well but I still have some blood clots that the doctors just couldn’t get and my kidneys still don’t want to work. I’m trying really hard to make them work and do a big pee for the doctors but it’s really hard. My surgeon was really great and he even put me on this thing called dialysis so that way me and my kidneys can take a little break and try to heal. This is the scariest time of my mommy and daddy’s life. I just want them both to be by my side. But with bills still coming and unknown medical costs they are scared. I want my mommy and daddy here with me right now because the doctors say that I’m going to be here for a while, they told my mom and dad that I’m going to have to skip the holidays this year because I’m just too sick to go home. Anything at all could help them and me. Thank you! Love Brycey aka Bam Bam