Hey all. After 10 years of struggling with mounting diagnoses and debts, I finally have some answers as to what the overall picture is and it's not good. I have adult onset muscular dystrophy. Like many with this disease, I've gone through a series of misdiagnoses and doctors who are afraid to take a stab at figuring it out. It wasn't until last year that I ended up at the head of neuromuscular at Penn that I started to get real answers. Previously I was told I had dermatomyositis and then Stiff Person Syndrome (shout out Celine Dion). What makes this all more complicated is that I suffered brain damage from meningitis in 2016. I have already been denied disability once and now I have a lawyer and my neurologist has agreed to testify. This may take years though as social security has been gutted. With the loss of my mother last fall, things are truly tight in my immediate family as far as funds go. Please consider helping to help me pay for my procedures like hormone replacement (I'm in endocrine failure) and therapy to help me mentally survive this hell. Thank you.