This donation is for my daughter and me so we can cover bills, rent and some of her before and after care, while we are out at children’s hospital for about 2 1/2 months while she recovers from spine surgery. Her halo surgery is July 27 and her spine surgery is September 1. Here’s a bit about her, She had her first surgery when she was around 3 years old. She has restrictive lung disease so she gets winded very easily, her heartbeat starts in a different spot then everyone else’s do, she also has what she calls weird funny feelings in her chest randomly and it cause her to tighten her hands and hold her breath for a min sometimes. She has trouble with weight gain as well. She was born with torticollis and had a really bad head tilt when she was born after they got her heart beating again when she came out. Children’s hospital corrected it as much as they could with physical therapy but she still has it slightly and is restricted on how far she can turn her head on one side. She also has where one of her feet slightly go up on one side and one slightly turns down on one side. This caused her to trip a lot and she wore Afo braces for a long time. It corrected it enough to where she doesn’t trip as much now. She was also born with a rare one of a kind scoliosis in the top of her neck and a cyst on her spinal cord that they have been monitoring ever since her first surgery. Her first surgery they did bone grafting and untethered her spinal cord. After that surgery she was not able to walk at all. If you touched her legs or feet she would cry and the hospital said the pain she was feeling would be described as tons of pins and needles kind of like when your legs fall asleep. She remained down at children’s hospital for so long doing physical therapy. I never left her side helping her with everything, trying to walk, her bathing care, her medications, her therapy’s, properly using her body brace and so on. Eventually she started walking to me while we were still admitted down at children’s. She is 9 now and has to have surgery again because her spine has progressed so much now that you can see the hump at the top of her neck and the shift in her hip bones. Her first surgery is going to be a weighted halo that they will have to screw into her head and that’s the first day that we are admitted. We will remain at the hospital for 2 months while that slowly stretch her spine with the halo. Then she will have her second surgery while we are still down there. They will take off her halo and be doing possible bone grafting again. They will be monitoring her cyst during the surgery and untethering her spinal cord again and they will be putting in growing rods. After her surgery we will remain in the hospital for about 3 more weeks while she recovers with hopefully no complications with her legs this time. And then sent home on pain meds and in a body brace for about another month is what they were telling us. I really hate asking for any type of help. But this is such a scary and heartbreaking thing especially considering what happened the first surgery. My work does not provide pay and of course I will not be leaving my child’s side the whole time. So financially I am stuck and worried not top of being worried about all of this. I’m trying my hardest to keep it all together to her. But I will not lie I definitely could use any type of support/help. Anything is appreciated more than you will ever know. We’re just trying to reach what we can so we don’t have to worry before and after. Please keep us in your thoughts and prayers all I’ve been doing is stressing and crying.



