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Support for Malayna's Recovery Journey

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Hi, my family is currently going through a life changing event. My wife Malayna had surgery on her bladder and pelvis in the beginning of April. I am an active duty First Sergeant in the army and was deployed to Poland during the time of the surgery. I was called by a post op nurse from my wife's phone explaining she was sure my wife was having a stroke and was being discharged anyways, she let me facetime my wife where I saw the entire right side of her face was not moving, she couldn't even blink, her speech was slurred, she was confused, and she was struggling to stay awake. This nurse fought hard against the DR and Anesthesiologist not to send my wife home and for them to start stroke protocol, they even spoke to me and still decided to send her home to our 3 small children, stating the "breathing tube was on that side and must have stretched a facial nerve". Early the following morning my son called me afraid his mom was dying; she woke up and wasn't able to walk or talk anymore and was in severe pain on her right side. One of my soldiers who was deployed with me, his wife went and took my wife to the base ER, where she was transferred to Nashville in the ICU for a stroke. My in-laws dropped everything in NY and drove down to be with our children, while I was on flights trying to get home to my wife and children. My wife spent a week in the ICU, then was transferred to another hospital for inpatient rehab. She spent almost a month in the hospital learning to talk, use a wheelchair, and start getting her body to work again. My wife had a left sided ischemic stroke in her brain stem, her entire right side has been affected by muscle weakness, she has no feeling on the right side at all besides the constant stabbing pain of nerve damage when she moves any part of that side of her body, accompanied by burning in her neck and right shoulder. She has severe migraines constantly now, she no longer has visual perception and cannot process what she reads and sees, her memory has been affected, she was diagnosed with a neurogenic stuttering and is still struggling to talk because her brain cannot process breathing and talking at the same time causing her to get dizzy when she is talking and making the migraines worse. Her heart has been affected on top of her lungs as well causing her to have VT, SVT, and sinus arrhythmia. Her brains chemical balance was thrown off and they're working hard to get her levels to even out, as well as getting her neurotransmitter levels coming up. She is wheelchair bound if we want to go anywhere now, but at home for short distances can use a walker with an ankle/foot brace, a knee brace, an elbow brace and a wrist brace, they're deciding if she'll need one for her back/hips as they build up her activity tolerance and try and get her to be able to go farther. She has a home health nurse to help her bath and do daily activities, she is doing home PT, OT, SP until she can build up her tolerance and go to outpatient therapy at the hospital. My wife is 30, she was in school working towards her master's in science and master's in nursing, they removed her from her program because of her mental cognition deficits, and her physical disabilities. This hasn't just impacted my wife physically but also mentally; she is so sad and says she feels trapped in her body because she can understand what we say to her but struggles communicating back, she can no longer just get up and walk to the couch or bathroom. My very independent wife has lost her independence. Our oldest child is autistic, the one who called me to help my wife, he is regressing and is struggling to even be around his mom because he was traumatized seeing her in the worst state of her life. Our two youngest spend every waking second worrying about their mom and wanting to be with her to the point she cannot sleep alone, the youngest tells her a monster got her face and he'll keep her safe from it coming back. My wife's Drs helped set up therapy for her and for our kids as well. My Unit has been amazing in this time allowing me to leave my deployment to be there for my children while their mom spent a month in the hospital and while she is trying to recover enough to be alone. We are being bombarded with medical bills, her brand new truck she got for her 30th birthday is useless and needs to be traded in for a medical van for her to be transported anywhere. I am in the process of moving to a one-story ADA home, so once she can move around the house, she'll be able to because we were in a two-story home with the bathrooms and bedrooms upstairs (which she cannot go up or down). We are hoping between the army community, our home communities, and family we can raise money to help with my wife's medical bills (current and future), us having to move, and to trade in her truck to get a medical van. Even $1 helps us and is so appreciated.

Organiser

Malayna Clawson
Organiser
Fort Campbell North, KY

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