My life changed unexpectedly during my senior year of college, though I had been experiencing symptoms and searching for answers for years. Some doctors thought I had cancer, others told me it was just anxiety, and many simply didn’t know what was wrong. After countless appointments and tests, I was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) and Mast Cell Activation Syndrome. My doctors now also suspect Hypermobile Ehlers-Danlos Syndrome.

My daily reality includes heart palpitations, joint dislocations, dizziness, nausea, brain fog, fainting, and chronic pain. In just the past year, I’ve had three MRIs, two ultrasounds, a CT scan, and over 50 units of blood drawn. Managing my health has become a full-time job.

Despite everything, I tried teaching fifth grade this year, and absolutely loved it. Being in the classroom and getting to work with my students brought me so much joy. However, by the end of each day, I would go home in a significant amount of pain. Ultimately, I have had to turn down full-time teaching positions because my health wouldn’t allow it. This is a very defeating feeling, especially when there is no clear path forward for seeking treatment. My dream is to return to the classroom when my body is more stable.

I regularly see a physical therapist, primary care doctor, cardiologist, geneticist, pain management specialist, allergist/immunologist, and hematologist. Some days, I feel well enough to spend time with friends or do basic chores. Other days, I can’t get out of bed, or I’m at another doctor’s appointment. The unpredictability makes it hard to plan for anything, and it's exhausting, emotionally and physically.

These are lifelong illnesses, and I will need ongoing medical care and medication for the foreseeable future. One of my medications is expensive even with insurance, and with a new year and a high deductible, I’m expecting to pay even more for medications, doctors, and treatment. Since my chronic illnesses are not well-researched, many doctors and treatments are also out of network, making care even more costly and difficult to access.

Between medical expenses and student loans, I expected to pay off my debt with a post-college job, but I’m struggling to stay afloat. I know the world is chaotic right now, and money is tight for many, but any help would mean a great deal to me. I am very grateful for the support system I have and for anyone who can help. Your kindness will make a real difference in my life as I work toward better days.