Believing in a Miracle for the Benavides Family

Hi everyone. I have created this go fund me to help the Benavides family with bills, food, gas, and other expenses. Please pray for them, believe it and believe in another miracle for Isaiah and this sweet family. Pray like you never have before. Thank you.

This is the latest update from Ayla. 12/30/31

This is all I can muster up to provide.

Isaiah woke up Saturday not acting right. He was bawling and hysterical all day. Wouldn’t stand. Was completely exhausted and slept most of the day. You could barely have a conversation with him. I knew something wasn’t right so I called oncology. Got the run around, per usual even though I voiced my concerns for several different things.

Said forget it…. Took him to Munson ER and to my suspicion found his calcium level was 14.7. This is critically high and last time he had this, it was caused by bone destruction and severe cancer progression I watch this number every week. I watch it and track it…. It’s the one lab that always has me freaked out until it results. I knew the moment he acted how he did, this is what was wrong. I’m so thankful I went with my gut and nursing instinct and took him in.

We took an ambulance down to Devos where we have been admitted. They are pumping him full of fluid and giving lasix to try and get rid of the calcium. He is having heart arrhythmias from it and has been vomiting severely. His heart rate was all over the place but starting to be more stable.

Last night, a blood draw confirmed that his calcium was trending up despite our current treatment so we had to make some decisions to try a drug specifically for this situation. We don’t have a choice if we want to get him better so we can go home. He did fine with that and is awake and playing on his iPad this morning.

We meet with an Endocrinologist this morning to discuss any other choices in helping the calcium. A PET scan is scheduled for tomorrow at 9AM. We have requested to not know all the specific details. It is too hard to hear. While we do not have any confirmation it is truly disease progression at this time, there is no other reason and they have let us know that multiple times.

We also will have a consult with Hospice today because we don’t have any options left. We want Zay at home where he loves to be. We want to be together as a family and spend his days doing all of the things he loves.

Isaiah has no pain or any symptoms related to progression. No other labs showing anything. It honestly just makes no sense to even our oncologist who has 20 years of experience 1) how he would have progressed so quickly from Monday and 2) why he is not in any pain. If the hypercalcemia is this bad, the cancer likely is rampant in his bones. I am so thankful he is not hurting. Right now the biggest hang up is his vomiting and the fatigue. Otherwise he has been so dang good. If you had seen him 3 days ago you would understand why this is so crazy.

We are fully aware of our situation right now and it isn’t good. I am pushing so hard to get on top of this and get him more comfortable. We do not want him to suffer. I couldn’t tell you the last time we have slept or ate. It just keeps getting harder.

Asking for complete privacy. I know you are here. I know you are ALL praying. There is nothing anyone can do or words anyone can say. What time we have left, we want to be at home as a family. I don’t know how, or if, we will make it through this. This all happened so incredibly fast, I still can’t grasp the fact, we may have only days left with our buddy.

God. Where are you?! Why aren’t you here?!! My sweet boy. My precious baby zay. My best buddy. Oh my gosh does it hurt so bad. .

Please pray for a miracle. Please beg God to save our son. If you want to do something, just pray. Pray on your knees God will spare our precious son. There is not a thing I won’t do for him. Just please pray like you never have before. I don’t want to believe in Fod right now. I am really struggling to understand why He would allow my son to be taken from us. But, we have nothing else. There is no other way. It’s impossible and the only one greater than impossible is the God who loves Isaiah more than we do even if that is hard to believe right now. I won’t stop believing or give up on Isaiah. I won’t be the one to fail him. Please God. I’m begging you