My grandson was born with a rare genetic skin disorder called Epidermolysis Bullosa. This condition means his skin is extremely fragile, requiring him to be bandaged from his neck to his toes. These bandages need to be changed every other day, which is a delicate and time-consuming process. On top of this, he has developed a heart condition called dilated cardiomyopathy and is currently home on hospice care.

Caring for him requires a significant amount of medical supplies to keep him safe and comfortable. Right now, we are changing his bandages in our living room, but it is not ideal for his needs. We are hoping to create a dedicated space in our home specifically for his bandage changes and to store all of his medical supplies in an organized and safe way.

We are asking for support in creating a safe space dedicated to our grandson’s medical care. Any support would be greatly appreciated as we work to provide him with the best possible comfort and care during this challenging time.