Support for Comfort in TBC1D24 Journey

cynthia soto is organizing this fundraiser.

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Subject: Personal Update from Our Family

Dear [Recipient/Team/Community],

I wanted to share a deeply personal update with you, as I know there have been many questions and concerns circulating. For the past two months, my 15-year-old daughter has been in hospice care due to a rare degenerative condition called TBC1D24.

She has always been the happiest, most loving child, lighting up every room with her smile and delighting in nursery rhymes sung to her. Unfortunately, her health has continued to decline. As her time with us grows shorter, our greatest hope is that she remains as comfortable and pain-free as possible.

As a parent, I would trade places with her in a heartbeat if I could. Watching her go through this has been the most difficult journey of our lives.

If you feel moved to support us during this challenging time, we would be profoundly grateful for any contributions. Your continued kindness, prayers, and positive thoughts mean more than words can express.

Thank you for your compassion and understanding.

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