Update: Laz has the kidney stones - he has the calcium reabsorption and filtering calcium issue in his kidneys

He also has a genetic disorder/ autoimmune disease called complement factor H deficiency

CFH protein is apart of the immune system, because that part of his immune system is not working - the other part of his immune system is overactive, the part that is overactive attacks the tissue of the kidneys which can essentially just lead to end stage renal disease

One of his nephrology doctors said the thing he is at highest risk for right now is a condition called aHUS which is a rare and life-threatening disease that causes blood clots in blood vessels in the kidneys.

I don’t have any more information right now

I don’t understand why this is happening to him

I’m absolutely shattered

Please just pray for him every single day

As a mother to 3 I still have not been able to wrap my head around our new reality that changed overnight. My sweet little Lazarus is our now, 14 week old who has an acute kidney disorder. This journey started at just 6 weeks old for my little guy. It was a trip to the walk-in for something I thought nothing of. When I became a mother of 3, I quickly learned it’s something every single day with at least 1 of them so a simple google search that morning immediately calmed any worry I had. When the issue repeated itself the following day I decided to visit the local Children’s hospital. There I learned our 6 week old baby, who still did that sweet little newborn scrunch every time I picked him up, had 5 spots on his kidneys that looked like stones and that his renal blood panel labs and urine labs were abnormal. We were sent home with a follow up appointment but my God given mother’s instinct knew something serious was wrong. I asked our pediatrician for her help and without hesitation she referred us to Stanford Pediatric Hospital to be seen in the Pediatric Nephrology Clinic. What we thought would be a simple visit turned into a day full of appointments, blood labs, urine labs, genetic testing, ultrasound and consults. “He is our medical anomaly” as described by the best Pediatric Nephrology team on the West Coast of the United States. Despite being 3 months old, he faces abnormal kidney function alongside having now several kidney stones in both of his kidneys. Even through all of this, Lazarus is the happiest baby— our ‘little lazy Laz’, he never cries, always smiles and laughs and loves watching his older brother and sister play. We have started our journey for answers and treatment. I have absolutely no idea what that journey will look like but I do know that we will be traveling often to Stanford to see his care team and many other specialists (geneticists, urologists, etc.) in the very near future. These frequent trips are essential for Lazarus’s care, but they come with significant financial strain. We need help covering travel expenses and other costs related to his treatment. We plan to relocate our home in order to be closer to his doctors and team. This has put a lot of pressure on our family, but we are determined to do everything we can to support him. Lazarus’s resilience and joyful spirit inspire us every day. We are reaching out for support so we can continue to provide him with the care he needs and keep our family strong. Any help will make a meaningful difference in his journey and in our lives. Please keep him and us in your hearts and in your prayers.