"We went in for what we thought would be a normal 20 week ultrasound on December 9, 2020. To our excitement, the nurse immediately told us we were having twins (we found out a boy and a girl later that week)! Wow, so many emotions go through you when you find out you are having 2 instead of 1! The nurse took quite a while to do the ultrasounds and then called in the doctor. We were a little bit worried because the nurse didn't say much during the ultrasounds. The doctor immediately showed us the difference in the 2 babies' hearts and described what looked like (boy's heart) a Congenital Heart Defect (CHD) called Hypoplastic Left Heart Syndrome (HLHS). They set us up for an an appointment for an echocardiogram on January 8, 2021.
HLHS is a congenital heart defect in which the left ventricle is underdeveloped due in part to reduced blood flow to the heart. There is no cure for hlhs, but there is a combination of 3 heart surgeries (Norwood, Glenn, and Fontan Procedures) that can be done to redirect the blood flow. Over the next few days of extreme emotions, praying and processing we decided we cannot wait until January 8 for the official diagnosis. We got a hold of Childrens' Hospital in Minneapolis and got an appointment for December 20. We went down to Childrens on December 20 for an echocardiogram and Baby (boy) Goettle received the official diagnosis of HLHS.
We are moving down to Minneapolis in March and the birth of the 2 babies should be around the beginning of April. The first surgery, the Norwood, will be most likely within the first week after birth. The second surgery, Glenn, will be around 4-6 months old and the third will be when he is around 2-3 years old. "
The link to the caringbridge site is here:
- Sharon Pederson
- Badger Dachshund Club
- Sherry Wenner
- Cathy Auseth
- Debbie Knudslien
Organizer and beneficiary
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