Hello everyone! My name is Ayla and this is our story about our sweet angel named Caspian Morrow.

Born to my husband, Christian, and I at 36 weeks was a fighter. The ending of my pregnancy was spent with us and our three children living in the hospital due to running out of amniotic fluid and high blood sugar. From the beginning of my pregnancy our little man was a fighter. I was told by two different hospitals and my OB that I was miscarrying him. I went into this pregnancy with very high, uncontrolled blood sugars and begged the doctors to give me some insulin from the beginning to avoid any damages. Since everyone thought I was miscarrying, they continued to brush it off until around 10 weeks. In case you didn't know babies major organs are developed in the first 12 weeks meaning it was crucial for them to be controlled. I struggled the entire pregnancy getting them in the target range and that was with me being in the hospital a whole month before he was born. He was supposed to have been healthy though. All the scans and genetic testings came back perfect. Wrong.

On November 26, 2025 we welcomed our sweet boy into the world! I had over 900 units of insulin the night before I had him so we expected him to have some sugar problems and to be on the larger side like my others. To our surprise his sugar was perfect and he weighed a normal amount of 7lbs 7oz. He was born with respiratory distress which landed him in the NICU. We were devestated but experienced this with our second so figured he would be there for a week and be good to go! Wrong again.

Caspian was born with many health problems that we were not prepared for leading him to an extended NICU stay and a transfer to a bigger, better hospital 4.5 hours from our home. He was born with both a VSD & ASD in his heart. (Two holes) The VSD is so large, he is requiring surgery around 4-6 months (if he can go that long) to repair. He was also born with a few genetic disorders that do not play in his favor: chromosome 16p 12.2 deletion, chromosome 1Q 21.1 microdupliation, & MEIS2 mutation. In addition to these he also suffers from cleft palate, clubb foot, pulmonary hypertension, hypotonia, tetralogy of Fallot, micrognathia, Pierre Robin Sequence, and Bronchomalacia. Our baby was dealt a very unfair set of cards in his tiny short life. The recent discovery of his bronchomalacia has confirmed why he struggles to breathe and cannot come off of the respiratory support. (Hi-flow & oxygen) The doctors told us he will need a trachea tube that could be permanent. The heart surgeons won't touch him to repair his heart unless we agree to the trach. My husband and I are all over the place while trying to hold it together for our other three children.

That is what brings me to this. We are currently staying at the Ronald McDonald House but only allow four people to a room due to the fire code. That leaves my husband and I fighting to get on the waitlist for a sleep room every day. There are some nights that the car is where we go and it has been very cold with these crazy weather conditions. (NO CHILDREN ARE EVER SLEEPING IN THE CAR) We do not have any support that can help us and we have already utilized all the agency support that we can. Unfortunately, our regular bills and living expenses do not stop even though it feels like our whole world is falling apart. The hospital estimates Caspian will be here at least another 6 months and possibly longer depending on how well he tolerates the upcoming surgeries. We are currently looking for some part-time employment here in Nashville to keep us afloat. We have NO income at the moment.

If anyone can help us towards any of our needs, it would be much appreciated. Times are so tough, as they are for everyone and our sweet baby needs us right now. The odds are against him but I just know he will make it and push through!!! Please continue to pray for our family and especially him as we have a long journey ahead of us. If you have any questions, please feel free to reach out to me directly!! Thank you all so much for everything!