Support for Arabella Grace

6 year old, Arabella, suddenly became ill in April 2018.  She became unable to process any foods or liquids.  After many ER visits and visits to the pediatrician, she ended up in the hospital.  She has now been admitted 78 times to 3 different hospitals.  Including 2 hospital stays at Boston Children’s Hospital. We thought she had a rare GI dismotility disorder, but other symptoms started presenting , and we have learned she has a rare Mitochondrial/Metabolic disease. This disease causes her to have GI problems so she has gastrointestinal tube in her stomach so we can feed her if she can’t by mouth, she has epilepsy, and is also autistic. Her body now goes into acidosis. This sickness lowers her blood sugar to dangerous levels, gives her a high fever, and swelling, and fills her body with acid cause all of her organs to over work. It puts her in the PICU immediately when this happens. She barely lasts a month or so between episodes, and we don’t know how much longer her little body can fight this battle as the disease is taking over more and more of her body systems. The doctors,  specialists, and Genetic doctors at Emory have exhausted all resources and are no longer able to treat her any further.   Since Arabella lives in Georgia, she and her parents will be flying to Philadelphia  for this appointment and any appointments after. Since this original posts Arabella is now 6, fighting an incredible strong fight, but has become sicker.  Shes not gaining weight or properly getting nutrients due to her body’s lack of metabolizing properly so it uses muscle and proteins for nutrients instead of carbohydrates like it should. We feel hopeless as the diseases like hers usually ends a childs life inevitably. This is too much for us to bare. Recently we have found out that the Children’s Hospital of Philadelphia has taken on her case in their Mitochondrial/metabolic clinic in hopes for some sort of solid answers and the hope of a diagnosis or at least being able to provide her with a better quality of life as long as we are given! The costs of flights, and her healthcare has accumulated over the last almost two years of this battle for her life continues we are asking for any help if you can to give our little girl the best life, and medical care we can!  Her father is a USAF civilian firefighter, who works 72 hours a week and is running low on leave due to her ongoing hospital stays.  He is also a USAF veteran of foreign wars, both Iraq and Afghanistan.  Her mom has epilepsy and therefore is unable to work.  We are raising money to offset the costs associated with the trips to Philadelphia, and also our local hospital as she is in and out of there almost monthly right now!  Our family would appreciate anything you could give, but we covet your prayers more than anything for our precious baby girl!