As most of my friends and family know I've been sick since I was about 16 and just continued to get worse. I was finally diagnosed with Endometriosis in 2016, I had my initial diagnostic surgery as an emergent situation and then 3 months later had surgery in Wisconsin to try to stage and clean out as much endo lesions as they could. January 2017 it was found I had an adenomyoma in my uterus and again went into surgery in Wisconsin and it was found the endo was on my left ureter and throughout my pelvis. The adenomyoma was removed but left a small hole in my uterus. After that surgery I had issues with bleeding despite being on 2 different birth control pills so my care team and I made the decision to have a partial hysterectomy at 21. Not an easy decision at all but with the hole in my uterus and suffering I'd have done anything to make it even just a bit better. I was able to manage as well as I could until this past june after bouts of peritonitis, blood in my urine, trouble with breathing requiring nebulizers now at night, chronic fevers, infection and hemmoragic cysts rupturing frequently my only choice presented to me- or so I thought- was to have both of my ovaries out and June 4th that became my reality. I went into surgery crying and came out crying as well. During that surgery they found that the endo lesions were on the dome of my bladder, my abdominal wall, throughout my pelvis, possibly my diaphragm and intestines as we didn't have anyone here to supervise and look. When the kidney pain started we thought it was just the endo and brushed it off until I couldn’t ignore it anymore and we did biopsies of my left kidney and found the loin pain hematuria syndrome as well as a membrane disease the Mayo Clinic diagnosed after being sent my biopsies. My kidney specialist had referred me to UW Madison because we aren’t capable to deal with these kidney diseases here. I had my left kidney auto transplant in February and now we are finding out the diseases are also in my right kidney. I’m waiting to hear when we will be doing biopsies for my right kidney, but my liver enzymes have been elevating so that’s a concern as my dr says every time they elevate that’s more cells being damaged and will lead to cirrhosis so we’ve been investigating why that’s happening and pulling back extra Tylenol which has been difficult because that helps to bring my temp down. The last few weeks has been a whirlwind of emotions for not only me but also my care team, They have told me over and over there’s nothing I could have done to prevent this but I still feel so bad that I can’t finally tell everyone that I’m okay, my care team has done so much to help me and support me for years through this but still it continues. We’ve been talking about doing DNA testing to see if there’s a mutation or genetic component and to see if I’m predisposed to anything else. Thank you to everyone who donates, shares, and sends good thoughts and prayers! Sometimes sharing your story is tough but it also gives you strength!