Support for 10 Year Old Cancer Patient Oliviah

Please Help Oliviah and her Family! Oliviah is a 10 year old girl suffering from a very aggressive and highly invasive form of cancer: NF1 - Neurofibromatosis type 1, malignant neoplasm of peripheral nerves and autotomic nervous system, and Hydronephosis of her right kidney from a benign tumor stemming from the NF1.   Oliviah has a benign tumor that is wrapped around her uterus and rectum, growing up her spine.This tumor can not be removed due to it being wrapped around all the organs.This benign tumor broke a piece off and caused a cancerous tumor to grow within 3 days in Oliviah's right buttocks, it was literally the size of a an adult womens buttocks.Which is very rare and honestly just doesn't happen.This all happened in April 2019 on Easter weekend! The Oncologist team had Oliviah immediately start 3 day rounds of Chemotherapy every other week and 25 days Mon- Fri of Proton Radiation,to her right buttocks and to her ( female area) in the attempt to hopefully shrink the bening tumor and the cancerous tumor. On Aug.7th 2019 Oliviah went into surgery to have the cancerous tumor in her buttocks removed.Oliviah coded on the tabe which means (her heart stopped for 15 min) after the tumor was removed, so the surgery team immediately flipped her over and started doing chest compressions.Oliviah was in the ICU for 24 hrs before waking up in unbearable pain because her tumor removal was left wide open.Everything happened so fast that they had to get Oliviah stable, so Reconstructive Plastics did not close her tumor removal area in the right buttocks.The Plastics Reconstructive doc wanted Oliviah's body to rest because he told LeAnn Oliviah's mom that, he felt that Oliviah just needed to rest after seeing her code in the operating room. On August 12th after 4 days of this sweet girl going through all the pain she was enduring from having a wound area wide open.Oliviah went in for her now 2nd surgery to close her wound area up.The doc spent 1 hr in the operating room removing dead tissue because the heparin given to Oliviah for her heart stopped the blood flow to the wound area causing all her skin tissue and vascular tissue to die..She was left with a massive concave wound area and no right buttocks, hard to fathom what the next steps were going to be..Plastics removed the muscle from the top of her right leg and moving that up into her wound area putting 44 stitches into her leg from this flap surgery..He then told Oliviah's parents that he had never seen anything like this and she would never walk the same and would use a walker.. Oliviah has spent the last year battling not only an open wound, but also her very invasive rare cancer diagnosis. The Chemotherapy and radiation treatments did not work and as of now, there is not a chemo that the doctors can say that will work because Oliviah has such a rare case.She is the study.She is battling 2 spots of cancer one deep down in her pancreas and the other spot by her left kidney.She has to date had a total of 10 very intense painful surgeries,9 of them being in the attempt to to rebuild the vascular tissue wound area. The funds raised will go towards paying Oliviah's ongoing medical costs, surgeries, special needs at home (wound care, special medical furniture, handicap accessible changes to home, etc), overall expenses incurred by the family in the past through her tragic ordeal, and also future costs for surgeries and overall medical expenses.   Some of the funds will also go towards helping pay the family's monthly housing costs, as her mother was forced to quit her job in order to take care of Oliviah and her permanent 24/7 wound care needs. Oliviah and her Family are in urgent and desperate need of you help.   Thank you!!

Donations

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  • Donna Ruark 
    • $56 
    • 1 mo
  • Anonymous 
    • $300 
    • 1 mo
  • Anonymous 
    • $50 
    • 2 mos
  • Jayde House 
    • $50 
    • 2 mos
  • Anonymous 
    • $300 
    • 2 mos
See all

Organizer

Kembly Mourelo LeAnn Riddle 
Organizer
Arizona City, AZ
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