Support Family with son's continuing treatment for SMA

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£6,067 raised of £10K

Support Family with son's continuing treatment for SMA

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My name is Paul and I am asking for your help. Friends of ours have recently found themselves in an awful situation. Isaac and Hannah's beautiful son William has been diagnosed with SMA (Spinal Muscular Atrophy) at just 6 weeks old. SMA is a rare, genetic condition causing progressive muscle weakness and wasting due to damage to motor neurons in the spinal cord, ultimately affecting voluntary muscle control and, in severe cases, breathing and swallowing. It's a progressive condition, meaning the muscle weakness and atrophy (muscle wasting) worsen over time. Isaac and Hannah have to share constant care for William who needs to wear a mask to aid his breathing as well as being fed with a syringe via a feeding tube. As well as the 24 hour care, the family continue to travel regularly to a specialist children's hospital in Bristol for ongoing testing, leaving Isaac unable to continue working and provide for his family. We are asking that as we continue to pray for a miracle for William, that we might also consider contributing financially to provide for their practical needs during this stressful and anxious time.
All funds raised will go directly to the family's bank account. This is to help them with ongoing household bills, and any incidental costs incurred while staying in Bristol. The aim of this funding is to see the family through until such time that Isaac may be able to return to work, which may be quite some time. Isaac and Hannah are so grateful for all the help that they have received and understand that this may be a long journey ahead. Any contribution that feel you are able to give will be much appreciated.

Organizer and beneficiary

Paul WRIGHT
Organizer
England
Isaac Shirin
Beneficiary
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