This Gofundme page has been set up by family and friends who want to share their love and support for Evy, Emily & Patrick as they fight against CDH.

Their Story:

Emily and Patrick went to a routine ultrasound at 24 weeks, when their world was flipped upside down. When the ultrasound tech came in and said "this is not normal", their hearts dropped. They quickly learned that their little girl had a congenital diaphragmatic hernia (CDH). CDH is a rare birth defect that affects 1 in every 2,500 babies and the cause is unknown. CDH occurs when there is a hole in the diaphragm allowing organs to migrate from the abdomen into the chest cavity, preventing normal lung development. The outcome is life threatening for babies and they require ventilation and surgery after birth. The hernia can either be on the right or left side or sometimes even bilateral. At the ultrasound appointment, Emily and Patrick learned that Evelyn's hernia was on the right side and was pushing her heart to the left. The very next day they had a full appointment at Children's hospital of Philadelphia which involved a 2 hour MRI scan, echo on babies heart, 2 hour ultrasound, and meeting with the team. They were informed that Evelyn had partial liver, small bowel loops, and gallbladder in her chest. They met her surgeon and discussed what would happen after birth. The next months leading to Evelyn's' birth they had numerous appointments at CHOP which involved ultrasounds, MRI's, and more echos to track her growth and development. The doctors can only tell so much through ultrasounds and MRI's, but they can never determine function of the lungs that she has. Evelyn will have to fight for her life after birth and undergo surgery to repair her hernia and then time to recover and learn how to feed.

Here's how we can help:

Emily and Patrick have relocated to Philadelphia to be by their daughters side through this time. They are staying at the Ronald McDonald house in Philadelphia which has helped them tremendously, but because of covid they cannot travel anywhere besides the hospital and the RMH. Emily is currently on leave from work, but Patrick is not able to work and produce an income due to the travel restrictions. Due to their insurance being out of network, their medical bills will be expensive but there is nothing they wouldn't do for this sweet babygirl. We are so proud of how well they are handling this situation, and want to help them in any way possible! Please consider donating to help them cover some of Evy's medical bills and support their fight against CDH. 

Patrick & Emily also came up with a great idea to sell wristbands to support Evy and also give back to the Ronald McDonald House Charities. You can find the link to purchase them below: 

https://pray-evy-day.square.site


Thank you so much for all of your prayers and support, they truly appreciate it from the bottom of their heart!