Support Evan's Journey with Huntington's

Hello, I am Valerie Struthers. My youngest son, Evan, who's 15, was just diagnosed with Juvenile Huntington's Disease. This is a neurodegenerative, progressive, terminal disease that has no cure yet. There's also no medication to slow down the progression. Usually, this disease doesn't start showing up until the mid-thirties, so the earlier the symptoms start, the quicker it progresses. Hearing this diagnosis has been so heavy on all of us, especially hearing this news at 15 years old. Since his father has it, he knows how terrible and scary it gets over time. This disease causes the brain to deteriorate more as time goes on. The speed of progression is unpredictable, but I have seen his symptoms progress over the last 3 years. This is considered a family disease because all the kids have a 50% chance of having this. There are so many things he has wanted to do that I could never afford because I'm only on disability due to my rheumatoid arthritis. I can't even afford to take him out and do fun things. This has been so heavy and overwhelming on all of us. Evan is the sweetest, kindest, most respectful, and empathetic teenage boy you will ever meet. He has always wanted to travel. My wish for him is to give him the best life I possibly can so he can enjoy it while he is still able to. I want to make as many memories as our family possibly can for him. We need pictures for albums that he can always look through as he will continue to have more memory loss. There's no way to tell how quickly his cognitive decline will go. We will be forever so grateful for anyone and everyone who can help us give him the best life from here on out. Small or large, anything is much appreciated. Please spread the love and share this with everyone you can please. God bless all the sweet, compassionate souls We thank everyone in advance for all your support to make my baby's wishes come true. Peace and love to all.