Support Elijah's Journey to Denver Conference

Hi, I'm Shirley Breth and my niece, Hannah Breth, has Elijah, who was born 3 years ago with a rare genetic disorder called Coffin-Siris Syndrome. Elijah has gone through a lot in his short 3 years of life. Those who have this rare syndrome can have a form of dwarfism and usually have feeding problems and, as with Elijah, require a feeding tube for full feedings or to have supplemental feedings to get them more calories. They also tend to be subject to upper respiratory infections, and Elijah went through that this winter, contracting RSV. He's recovering now, but he lost some of the weight he had finally started gaining.

The conference Elijah and his family want to attend is sponsored by the Coffin-Siris Syndrome Foundation and will take place this year in Denver, July 10-13. Hannah has expressed a strong interest in attending this conference to meet others whose children also have this rare genetic disorder, learn from and form a bond with other parents, and learn more about it and the type of research that is being done.

As we all know how this economy is working at this time, it would be impossible for them to afford this trip, so that is why I feel the need to come to family, friends, and other kind-hearted individuals and ask for help so Hannah, Darrell, and Elijah can attend this important conference.

If you find it in your heart, please help them out. Hannah, Darrell, Elijah, and myself, and my husband Tim Breth, thank you.