Help Us Fight for Eiliyah – Support Her Treatment and the Search for a Cure

Dear friends, family, and compassionate supporters,

We are reaching out as a family with heavy hearts but unwavering hope. Our beloved Eiliyah has been diagnosed with Diffuse Midline Glioma (DMG) — a rare, aggressive, and currently incurable form of childhood brain cancer.

Diffuse Midline Glioma (DMG) is a rare and aggressive type of brain tumor that forms in the central part of the brain, often affecting areas that control vital functions like movement, balance, and speech. It is most commonly found in children and is known for being difficult to treat due to its location. As a result of this surgery is not possible. Treatment typically focuses on managing symptoms and slowing the tumor's progression, but sadly, there is currently no cure.

This diagnosis has turned our world upside down. Eiliyah is the light of our lives — full of love, laughter, and a spark that shines so brightly. Watching her face this with strength inspires us every single day.

Just a week before Eiliyah’s birthday on the 2nd of August 2025, we began to notice small but deeply worrying changes. While walking around London to celebrate her special day, we noticed she was very unsteady on her feet and her speech started to slur without any clear reason. At first, we tried to stay hopeful — a trip to the GP reassured us that everything seemed fine. But in our hearts, we knew something wasn’t right. Trusting our instincts, we called 111 and were advised to take her to A&E. What followed was a whirlwind of hospital visits, tests, and a transfer to a specialist unit. After hours of waiting and fear, we were given the devastating diagnosis: Diffuse Midline Glioma (DMG).

There are currently only two clinical trials available, and we’re now waiting to see if Eiliyah will be eligible once her radiotherapy is complete and we know whether the tumor has responded. If she qualifies, we’re hopeful she can begin one of the trials, which may help to extend her life beyond the current prognosis of nine months. Because the trial is still new, there’s no way to know exactly how much time it could give her. If she isn’t eligible, we may have the option to seek treatment abroad, but it’s still early days, and everything remains uncertain.

We need to be able to act as quickly as possible to pursue any opportunity that may come our way. Every moment counts, which is why we’ve started this page — to give Eiliyah the best possible chance by being ready for whatever options become available, whether here or abroad.

Every donation will go directly towards helping Eiliyah access the treatment she needs and giving her the best possible chance at more time and more memories. If we’re blessed to have anything left over, it will be donated to DMG research and the amazing charities that have stood by us with love and support, so other families may one day have more answers, more options, and more time.

This is the hardest thing we’ve ever faced. We are so grateful for the love, support, and prayers we’ve already received, and for every act of kindness that keeps us going.

Thank you from the bottom of our hearts for standing with Eiliyah and with us.

With love,

Eiliyah and Family