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On October 18th, our daughter Eden Faye was diagnosed with Pontocerebellar Hypoplasia, Type 2A. PCH is a genetic condition that causes the brain to not form properly which in turn may cause seizures, difficulty walking, talking, eating, and breathing. There is no known cure for PCH, and very little research on the condition. Though PCH is considered degenerative, we have heard from others that Early Intervention and a good immune system can help prevent further her brain damage. We are raising funds to get Eden involved in new therapies that have been discovered that help with brain neuroplasticity, and offers the most hope for Eden’s future. Thanks for stopping by, and if you were able, donating to this cause. We love our daughter, and are trying to do everything we know to do to give her the best future.

