Support Duane’s Fight Against Autoimmune Encephalitis

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9 donors
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$2,400 raised of $6K

Support Duane’s Fight Against Autoimmune Encephalitis

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In October 2023, our world was turned upside down when our then 8-year-old son, began experiencing unexplained seizures. What started as a seemingly ordinary day quickly became a nightmare no parent ever expects.

Duane was rushed to Sacred Heart Pediatrics, where his condition deteriorated rapidly, leading to his transfer to the PICU. After weeks of critical care, his condition required him to be Life Flighted to Seattle Children’s Hospital, where he underwent extensive treatment to stabilize him. We hoped for a quick recovery, but a year later, Duane is still fighting an uphill battle.

He was diagnosed with Autoimmune Encephalitis, a rare condition in which his immune system attacks his brain, causing seizures, neurological complications, and significant challenges to his everyday life. Despite his bravery and resilience, Duane’s journey is far from over. In January, he will begin Phase 1 testing for a brain resection, an intensive process involving further hospitalizations, treatments, and months of monitoring.

The emotional and financial toll of Duane’s condition has been overwhelming. We’ve faced countless trips between our home and the hospitals, mounting bills, and extensive out-of-pocket expenses. Our family is doing everything possible to support Duane’s care, but we cannot do it alone. Your support will help us:
  • Cover travel expenses for frequent trips to Seattle
  • Pay for Duane’s ongoing treatments and hospital stays
  • Provide stability for our family during this uncertain time
We’ve set up this GoFundMe to raise funds that will go directly toward Duane’s care and associated expenses. Any amount, big or small, will make a difference in his fight against this challenging condition.

Through it all, Duane has remained brave, kind-hearted, and full of determination. His strength inspires us to keep going, and your kindness gives us hope for brighter days ahead.Thank you from the bottom of our hearts for supporting Duane and our family. Whether through a donation or by sharing our story, you are making a difference in his life.




Organizer

Ashley Betz
Organizer
Newport, WA
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