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Support Dean's PRS Treatment Journey

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Our son Dean was born on June 10, 2024 and arrived with a unique journey ahead of him. He was born with a cleft palate and later diagnosed with Pierre Robin Sequence (PRS), meaning he has an under-developed jaw and a tongue that falls back into his throat that can cause breathing and feeding challenges early in his life.

During the past several weeks, Dean has had two NICU stays at Winnie Palmer Hospital in Orlando, Florida and we are working on transferring him to Lucille Packard Children's Hospital at Stanford University in California to seek a non-surgical treatment, the Standford Orthodontic Airway Plate (SOAP) This treatment will be crucial for his development and will likely require that we return monthly for evaluation for 4-6 months. Dean will also require a cleft palate repair surgery sometime in 2025 closer to turning 1.

Your generous contributions will help cover the costs of traveling to appointments in California and Orlando, medical expenses, and ongoing care. Any amount you can donate will make a significant difference in ensuring Dean receives the best possible treatment.

Thank you for your support and kindness during this challenging time.
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    Co-organizers (2)

    Kathleen Forst
    Organizer
    Florida Ridge, FL
    Andrew Forst
    Co-organizer

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