David’s story

David is Blair’s 4-year-old nephew. He was diagnosed with epilepsy when he was only 2 years old, and since then his family has learned to live with the fear and uncertainty that come with watching a child experience seizures. This past week, they learned that David also has Tuberous Sclerosis Complex (TSC), in addition to his epilepsy and focal cortical dysplasia (FCD). This new diagnosis has brought even more questions and fear about what lies ahead. Next week, David is scheduled to undergo stereo-electroencephalography (SEEG) at Children’s Hospital of Philadelphia (CHOP), a procedure that will help doctors identify exactly where his seizures begin. After that, he is expected to undergo brain surgery as part of his treatment plan. His family is holding on to hope and trusting his medical team to help determine the best path forward.

As David’s family does everything possible to get him the care he needs, this journey is bringing an overwhelming financial and emotional burden. Donations will help with medical expenses, medications, hospital stays, travel to and from CHOP, lodging, surgery-related costs, time away from work, and everyday responsibilities so his loved ones can focus on supporting David through treatment and recovery. The family’s greatest wish is that these procedures will bring them closer to controlling David’s seizures and give him the opportunity for a safer, healthier future. If you are able, please support David and his family during this difficult time. Every donation, share, and prayer means so much.