Support The Butler's Fight Against Lyme Disease and mold

UPDATE: 7/9/25 David woke up today with partial paralysis in his right arm. He is being referred to UPENN medical hospital in Philly by hospital neurologist.

UPDATE: This Gofundme was created last May 2024 when his neurological Chronic 32 year undiagnosed Lyme disease became severe again and his ALS and MS returned. It reached 2400$ by November. We are reposting it to help Davids family as his neurological issues are coming back. He has done alot in the Lyme disease community to help others and created and runs the Mens Support group through Project Lyme. He was doing great on his lyme treatments until his recent surgery and his family finding significant black mold in their bathroom. This is not covered under their insurance policy so it will be out of pocket. For anyone who has followed his story, all of his medical treatments are out of pocket. His family lost well over 100k$ at this point. A mold remediation company came in and found other areas annd gave a rough quote of 18k$ to remediatite, pending the inspection on friday does not find more. David has suffered for decades with untreated Lyme disease and is trying to heal so he can enjoy his wife and 6 year old son again and continue helping the community find answres as well.

I am starting a Gofundme for my son, David Butler. He became chronically ill at age 10 and was gaslighted by the medical community for 32 years before properly being diagnosed. Doctors could never figure out his illness, so they kept giving him hundreds of different pharmaceutical meds and diagnoses. At age 32, his illness progressed into MS symptoms and was diagnosed with parkinsonian syndrome. Finally, at age 41, he started his journey with ALS symptoms and went through 18 months of grueling testing, three dozen different medications, and over 20 doctors just to be told they still didn't know what was wrong but, "Yes, you're dying".

In June 2023, he went to an LLMD (Lyme literate doctors) and was finally, after 32 years of torture and gaslighting, diagnosed with 3 IgG and 2 IgM bands of Lyme disease, qualifying even through CDC guidelines. He immediately started treating and within 5 months his ALS completely stopped, his MS was 50% better, and his parkinsonian completely stopped. He was also recently diagnosed with Bartonella in his brain.

David will be fighting this for the rest of his life and will always have neurological issues now because he was not properly diagnosed and treated for over three decades.

He has always been the person who helped others with their cars, houses, projects, fundraisers, and never asks for anything in return. He is a huge advocate for helping children from bullying and a huge advocate in the mental health, suicide prevention, and now Lyme community.

David has a wonderful wife and a 5-year-old son that fight right alongside him, and he fights to protect them. He continues to work as much as he can, but it is getting hard with the brain infection.

ALL OF HIS TREATMENTS since last June are not covered by insurance even though he qualified through CDC criteria, chronic Lyme disease is not covered by insurance. All of his doctors and 90% of his medicine is all out of pocket. Between loss of time at work, hospital stays, procedures, and medications, his family has lost 80k$ in the past 2 1/2 years and 3k$ just in the past month alone. Please help my son and his family so David can continue to fight so his little boy will have a daddy.