We are heading to Philadelphia for Tyler’s annual appointment at the Children’s Hospital of Philadelphia for his Friedreichs Ataxia. We debated on canceling due to finances but we’re hoping to turn it around! His appt is in just a few weeks on January 27. We are so thankful that his insurance is covering his appt but I’m still working out getting him coverage for when we need to travel. We plan to stay two nights while we are there because the ride was very exhausting for Tyler last year. We are so grateful for all of the love and support we receive, it keeps us going!